Forum Replies Created

  • katie beardsley

    Member
    September 18, 2020 at 9:40 pm in reply to: Family Member Refuses Medications

    Hello Charlene and Dr. Don I retired at 60 due to ill health and was diagnosed with IPF 6mths later but the best thing I did was retire

  • katie beardsley

    Member
    September 18, 2020 at 9:30 pm in reply to: Family Member Refuses Medications

    Hello Dr. Don thankyou for your reply and advise , I am now taking tablet half an hour before Ofev and that is helping with nausea and if diarrhoea gets to bad I take a tablet to help with that , I am slowly working things out but I never know from one day to the next how my body is going to react

  • katie beardsley

    Member
    September 17, 2020 at 5:37 pm in reply to: Family Member Refuses Medications

    Hello Jason my name is Katie and I have IPF ,I’m sorry to see you are having trouble with your family members decisions to not take their meds but I also understand what your family member is feeling as I have been feeling like I don’t want to take my meds either as they make you feel awful , I never know from one day to the next  how my body is going to react to meds as one day I will vomit all day and the next day I will be in the toilet all day and in between time i just feel lifeless and can’t be bothered doing anything, so perhaps your family member may be experiencing some of this stuff and just hasn’t said anything , I hate the meds and as I also don’t feel my condition is bad enough to be taking such strong meds I sometimes feel like going off them but I haven’t as I realise they may help to slow down the progression of the IPF but some days I think I would like Quality of life rather than quantity