[Ken Osterlund]

Just to give you some hope.  I was diagnosed by my pulmonary doctor in 2017 and given six months to live. I entered a research program and they verified I have IPF.  I had bad case of pneumonia in 2011 and had a HRCTS.  The research team reviewed the HRCTS  and discovered I had signs of IPF.  So you can live a long time depending on the type of PF you have.

By the way my father was from Aland. My mother’s father and mother were swedes from north western Finland.

 

Good luck.

[Ken Osterlund]

I have been diagnosed with IPF via a HRCTS. The spirometry measurement test has many variables, e.g., your condition, the tech, test equipment used, weather.  You need to take several tests and note the trend over time.  I have been in a gradual decline since the first test, with some tests showing improvement (good days).  The trend will give you some idea as to your general condition – rate of decline.  However,  your ability to do every day functions will be your best measure.