Forum Replies Created

  • Kerry

    Member
    December 29, 2023 at 5:22 pm in reply to: Air Physio

    Well that reply was a bit messy.

    It’s a very simple device basically a bent solid plastic tube enclosing a ball bearing. Its aim is to exercise your lungs. There are no drugs involved nor does it put anything into your body. You do all the work. You simply breath trough the device, hold your breath for 5 seconds then breath out through the device but while breathing out you must vibrate the ball bearing.

    It’s easy to find.

    Kerry

  • Kerry

    Member
    December 29, 2023 at 12:28 am in reply to: Air Physio

    I recently started using an air physio. I’m finding it difficult but each day I get a little better. By and large I’m finding it beneficial in loosening congestion in my throat and I can really feel it strengthening my diaphragm. It’s early days but I’m hopeful. At least it can’t do any harm at all.

  • Kerry

    Member
    November 28, 2023 at 9:27 pm in reply to: IPF Cough vs Bronchitis Cough

    Hi Blucoyo,
    I’ve had the dreaded IPF cough for years, long before I was diagnosed 6 years ago. It’s a dry cough and I’ve never associated the dry cough with lung congestion.

    I live in Australia and in a couple of states here the government runs a respiratory physiotherapy program. This program basically teaches you how to breath using your diaphragm to expel as much air as possible before taking a short breath in, you breath like a singer. With practice it really helps with avoiding breathlessness. I found it difficult to begin with but it’s really helped a great deal.

    Hope this is a little bit helpful
    Kerry

  • Kerry

    Member
    February 21, 2023 at 2:49 pm in reply to: The Story of my Father’s IPF journey

    Thank you so very much for sharing the story of your father’s journey. It gives me great hope and comfort. I live in Australia and was diagnosed with IPF 5.5 years ago. Like your dad, I too have not declined significantly in that time and I still do not need oxygen.  I’m very happy with my current condition particularly as I can not tolerate either of the drugs available to keep this condition in check.  They both seriously effect my liver.  If I get to live an active life for as long as your dad I’ll be a very happy lady.

    Thank you once again for your story of hope and resilience.

    Kerry

  • Kerry

    Member
    July 26, 2022 at 5:11 pm in reply to: Diagnosed with IPF – What can we expect?

    Hi, I’m Kerry and I’m 75. Five years ago I was diagnosed with IPF and so far so very good. My lung function has been closely monitored and has basically remained stable. I’ve taken both of the drugs that are currently available to slow the development of the condition and can tolerate neither. I exercise regularly, live a very busy and active life and I still can sing as a member 9f a pretty good choir.  I really push myself.  I do have periods when my breathlessness increases along with my associated cough and things go pear shaped but then things bounce back. I have never had the need to be on oxygen.

    I clearly remember how shocked and horrified I was when first diagnosed and I’m so very grateful that my IPF has progressed so very slowly so far

    I wish you well on your journey and hope you’re as fortunate as I am.

  • Kerry

    Member
    December 29, 2023 at 5:14 pm in reply to: Air Physio

    Yes, I’ve had medical advice. I’m a patient in a government sponsored physiotherapy program that has been very successful in Australia and it was, in fact, recommended by the physiotherapist as something that would help keep my lungs as elastic as possible.

    <font color=”rgba(0, 0, 0, 0)” face=”inherit”>It’s a very simple device, basically a bent solid plastic tube enclosing a ball bearing. </font>Its<font color=”rgba(0, 0, 0, 0)” face=”inherit”> aim is to exercise your lungs. There are no drugs involved nor does it put anything into your body. You simply breath in through the device, hold your breath and breath out through the device but on breathing out you must vibrate the ball bearing. You can easily find </font><i style=”background-color: var(–bb-content-background-color); font-family: inherit; font-size: inherit; color: var(–bb-body-text-color);”>AirPhysio at airphysio.com

    Kerry