[Kris manian]

Excellent information. Thanks for sharing. I have advanced IPF and I am considering transplantation.

I am going through the qualification test phase. If some one can shed light on those tests, how to prepare and look for will be good.

Also, what blood group that each of you had and how did that impact the wait for suitable lung donors?

thanks for sharing?
God bless?

[Kris manian]

I absolutely loved this discussion and thanks for all those feedback from transplant heroes.

I am looking in to transplant for myself and this helped a lot.

can any one tell the average wait time after qualification?

thanks

kris

[Kris manian]

Thanks for the great information on transplants. I am 71 and will need a transplant. I am in good physic except for IPF.

jack congrats for a successful transplant and nearing 2 years after that. God bless and live long.
how long is the wait after qualifying for transplant?

I live in Sanfrancisco Bay Area and UCSF will be the center for transplant.
please provide more info on tests for qualifying as well as post transplant info if possible.
thanks

kris

[Kris manian]

Thanks Charlene for that excellent article. I was blissfully ignorant and did not do any of it. Thankfully I am ok so far. I will start doing all you said.
Kris

kris

[Kris manian]

Wow! Hope it is much better than the current two drugs.

[Kris manian]

I forgot to mention that I do have supplemental oxygen.
Another question:

can being around a dog cause inflammation? In the past week my daughters dog is with us

Kris

 

[Kris manian]

Thanks Charlene and Patrick. I am taking Prednasone for inflammation a steroid. Is Symbicort a steroid. Is it better than Prednasone?
yesterday my doctor prescribed Ofev. I am going for a second opinion on Monday.

thanks

Kris

[Kris manian]

Thanks for sharing great information.
I have a basic question probably for a Pulmonologist but I will ask any way as some of you may know already.
what causes shortness of breath? Is it scaring/fibrosis of the lungs or inflammation of the lungs. If it is former then the anti-fibrotic drugs should help. Right?

thanks

Kris

[Kris manian]

Dear Don and Christie,

thank you very much for your kind and valuable response to my question. I really appreciate this support group for sharing their knowledge and experiences.

Don, can you elaborate about theVATS lung biopsy?
thank you very much

kris

[Kris manian]

Hi Michael,

when you go for walks do you carry an oxygen concentrator or tank. If oxygen level drops that low it can impact other organs. So please take care.
Kris

[Kris manian]

Thanks Patrick for that valuable info. I sure understand that you are not a doctor but you have gained knowledge and sharing it is valuable with honesty and openness.

God bless?

[Kris manian]

Thanks Linda for that great feedback information.
My ILD is progressing way too fast. In a matter of 6 months I went from almost normal, only go out of breath when going up hill to not able to walk a few feet breathing heavy and loosing oxygen level below 90.

so I don’t have time to wait and do further tests. Will taking Ofer at this stage help or hinder, you think?

 

thanks

Kris

[Kris manian]

Thanks Don for that info. My doc says since I am already on oxygen it is not advisable to undergo biopsy. Is that correct?
thanks

Kris

[Kris manian]

Piet,

Thank you very much for that valuable info on Cipla generic. I am originally from India and familiar with the company Cipla, a reputed company.  how do you order the drug from US? Is it possible now that Esbriet is FDA approved?

thanks

kris