Forum Replies Created

  • Karen Moeller

    Member
    June 22, 2020 at 10:09 am in reply to: Just got approved for Ofev

    I checked with Indian Pharma Network.  The response is that in India it is called Cyendiv and the cost is $550 for 60 100 mg pills and $100 shipping.  I will check with others and share.  While expensive, a lot cheaper than what I have found so far in the US.  Boehringer Ingleheim was not helpful.

  • Karen Moeller

    Member
    June 21, 2020 at 4:17 pm in reply to: Just got approved for Ofev

    Thank you for your thoughtful response.  I have no problem purchasing the drug from India.  I did google it and there are numerous companies.  If there is anyone reading this who is purchasing from India, can you provide the details?  Thank you.

  • Karen Moeller

    Member
    June 19, 2020 at 1:28 pm in reply to: Just got approved for Ofev

    I am new to IPF and to this forum.  Would like any advice on this issue – my pharmacy approved OFEV, however, the first month wiped out my drug benefit for the year.  I worked with Open Doors, but you have to be near poverty level for them to approve you, I was just denied today.  The annual cost of the drug is much more than we make in a year.  I have two alternatives – we get divorced and I apply as a single woman on social security or wait for six months until I go on Medicare.  I will, of course, talk to my doctor about holding off on starting the drug.  But it just seems there needs to be another way.  Again, would appreciate anyone’s thoughts on how to pay for this drug.  Thank you.