leontis teryazos
Forum Replies Created
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My wife Elizabeth has IPF and started laser treatments on Feb 15 using a class 4 K Laser in Montreal and under guidelines set by Dr. Andy Hall. I am recording her 6 min walking distance results to see if she is making progress. Just before laser treatments started she was able to walk 247 meters and her heart rate was 107 at end of walk. Today after 11 treatments she was able to walk 364 meters and her heart rate was 97 at end of the walk.
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Dr. Hall, ( @drandyhall )
Seems there was a problem with copy and paste and my post did not show table 2. In any case table 2 shows 6 MWD in meters (mean ± SD) as 30.94 ± 11.52 for baseline and 93.63 ± 29.96 after 10 days of treatment for study group. You can study downloaded if go https//doi.org/10.1016/j.ejcdt.2014.06.012<
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Peter,
I noticed on your Feb 25 post you say “My osteopath tells me K Laser have now issued their own protocols for treatment of Pulmonary Fibrosis patients”. Could you please share with us what these protocols are. My wife just had her 4th K Laser treatment using guidelines set by Dr. Hall and all is going well and noticing some general improvement. I am trying to monitor progress by having her do a 6 min walk and measuring distance and oxysat at end of walk. She does this using oxygen at 3L. This is a very easy way for all of you to monitor progress and perhaps would be interesting if we all share results.
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John,
My wife is just starting laser treatments for IPF and have been getting good guidance from Dr. Hall. Wondering what exactly are the 35% and 55% lung function test results you had as that is a terrific improvement and there a number of different things measured in lung function tests (FVC,FEV1 and FEV1 ratio).
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Hi John ( @caneelbay1 ),
Do you have a document you can email to me as an attachment that shows acupuncture sites for lungs. I definitely would like to show this ASAP to the chiropracter doing the laser treatments. My email is [email protected] and would much appreciate getting this from you.
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Hi Steve,
By 7 1/2 min each side do you mean font and back or left and right lung area.
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Hi John ( @caneelbay1 )
Do you have a document you can post or email to me that shows acupuncture sites for lungs. I definitely would like to show this ASAP to the chiropracter doing the laser treatments.
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John ( @caneelbay1 )
Wondering if you let us know some specifics about your Lung Fuction Test improvements. Whatever you are comfortable with letting us know.
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@drandyhall,
Also take a look at Lung Therapeutics IPF drug LT1-03. It also looks very promising.
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Charlene,
As regards the 6 minute walking test it is very important not to over complicate this.
All that matters is that each person who want to use this to measure improvement does it the same way each time. It is not important that everybody does it the same way.
For example I use it by walking indoors from one end of our apartment to the other, which is 15 yards and having the oxygen set at 3L. By doing it the same way each time you can see if distance being covered is improving or not and what oxysat and heart rate at end of walk. It does not matter how someone else is doing it as we are not measuring ourselves against each other.
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Jack,
Further to Terry’s reply would mention that have been recording 6 min walks for my wife, who has IPF. We determined at start she needs 3L oxygen to keep oxysat at 90 during test so doing all 6 min walks with 3L oxygen. In order to figure out if improving it is important to keep doing all 6 min walks you record at same oxygen level so that is pretty simple. As Terry said very important you use oxygen level that keeps your oxysat above 88.
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Andy,
You make good points so how about wording for introductory message to be something like.
This is a new thread and is should be used only to post results or opinions on your health after for before and after laser treatments.
We suggest you report your results after 5, 10 and 20 treatments.
Pulmonary function tests results are important because they are verified by a third party. One very simple test you can do is the 6 min walking test, where you record how far you go in yards or meters in 6 minutes. In addition to distance it is useful to record what your oxysat and heart rate are at the end of the 6 minutes. Some people need to use oxygen to do this and if they do they should record what level oxygen they are using. In addition you should report any general comments you have about if you feel better and can do more things than you could before. Lastly if you do not feel better or feel worse or can do less than you did before you should also report this. We look forward to hearing from any of you doing laser therapy.
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Dr. Hall,
What I meant was to give us results AFTER 10 treatments and then again after 20 treatments. It would be too much to have people give results every few days.
As you suggest could also be every 2 weeks but then to be meaningful would need to know how many treatments so that is why thought simpler to do it after every number of treatments. Other thing forgot to mention is that if reporting 6 min walk test should include if using oxygen and at what level. In any case we should finalize all this using Dr. Hall’s next input.
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Andy,
I would suggest to try and keep things simple for the Laser Results thread.
For example people could report their results after every 5 or 10 treatments.
Pulmonary function tests are important because they are verified by a third party. One very simple test to is the 6 min walking test, where you record how far you go in yards or meters in 6 minutes. In addition to distance it is useful to record what your oxysat and heart rate are at the end of the 6 minutes. Some people need to use oxygen to do this and if they do they should record what level oxygen they are using. This is what I have been doing with my wife and it is also one of the key results recorded in the Egyptian studies.
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Marsha,
If possible could you please let us know in simple terms what improvements you had in these tests. We are trying to keep track of actual results anybody has when doing the treatments as this is very useful for our own confidence and also convincing doctors to support doing this.
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Steve,
Would be interested to know how much Serrapeptase you are taking to get these good results
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Charlene,
I would suggest if possible you start a new thread called Laser Therapy Results and each one of uses this only to post what results they are getting after laser treatments. Some people are reporting results as PFT, 6 min walk distance, oxysat, exercise tolerance, etc. but it does not matter as all results useful. People not getting any results should also post this although so far no one has said this. This would let us show this thread to our doctors and not have to go through all the other posts. First one to post results was Andy in his original email.
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Dr. Hall,
I am guessing they could only cover 30 meters because they had to stop and sit down several times but still this part is very strange as patients were not in critical condition. In any case 6 min walking test results are amazing as in the 2018 Egyptian study the group dong the laser therapy went from 24 meters to 52 meters and in the 2014 Egyptian study they went from 30 meters to 93 meters. This laser acupuncture with low level laser. With such impressive results I am wondering if the laser acupuncture method may be more effective than what we are doing now. Doing both would be too time consuming and costly. Please let me know what you think about this as I imagine when you started your own laser therapy 4 yrs ago you probably did not know about these laser acupuncture studies.
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Dr. Hall,
The study link for “Role of laser acupunture in chronic respiratory diseases” was in your March 4 post and was below. I read study and copied and pasted results for the group that took the laser treatments and as you can see it says baseline 6 MWD was 30.94 meters. This seems incredibly low distance as from research I have done people with late stage lung problems usually do in 150/250 meter range. Would appreciate if you can let me know what you think….
BMI, spirometric data and 6 MWD for the study group baseline and after 10 days of laser therapy.
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Dr. Hall,
Is laser acupuncture something we should consider in addition to laser therapy?
I took a look at the Egyptian study link results you mention and see in the 6 MWT they were only covering a distance of 30 meters before the treatment. Is that correct as sounds extremely low for 6 min?
My wife, who has severe IPF was doing 240 meters before starting treatments. By the way she is up to 340 meters after 7 treatments, although all this is with oxygen.
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@jackblum
Jack,
I do not understand what you meant by results you posted on March 8 that say below. Can you please explain in more simple terms what was your oxysat and hear rate before treatments and after the first month.
“I just finished my first month of Laser therapy at 3 times a week. I definitely feel better. After 1st month, my resting pulse ox has went from 94 – and H.R. in high 70’s to HR to 97 – and 68 HR.”