Forum Replies Created

  • Liz Martin Drouillard

    Member
    September 7, 2018 at 9:05 am in reply to: Advice For New Caregivers.

    I am caregiver for my husband who has pulmonary fibrosis and COPD.  It escalated only 6 weeks ago….he was doing projects and playing golf without oxygen and today his body needs 5-6 liter flow.  I have been caregiver for family and friends but this is the first time for this Godly sweet man.  Heartbreaking.  I have slowed my life down to be with him and consider it my privilege.  I know I need to take care of myself and have tried to keep up with swim classes.  I think an important thing for both of us is giving him space and encouragement to talk about how this feels.  I know he wants to protect me but we can’t pretend.  Better we cry it out together and keep going.  We are trying to get out once a day for a drive or a meal but are fine having time together at home.   This is a hard time of life.