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  • Hi Charlene, new kidney issues….forgive me for being so blunt but I sure wish you could meet with the transplant doctors here at TGH….if this new kidney infection is caused by your medications for IPF I honestly think this team would be much more knowledgeable in this ….not that this has happened to me (yet)..but the transplant patients can…[Read more]

  • Sandra Vanzyl posted a new activity comment 2 years, 2 months ago

    Hi Brian, I have also been on oxygen 24/7 since Jan 3rd 2018, life changing to say the least, worked full time in December at a job I loved ….heading to Toronto on Jan 11, listed now and meetingnthe surgeon on Mon. Jan 14……I’m happy to chat with you anytime …..I’m 65 …(don’t know how that happened) …..YIKES

  • Sandra Vanzyl posted a new activity comment 2 years, 2 months ago

    …Hi Charlene, quiet time here this Christmas , I haven’t left the house since Christmas Eve LOL and slept until after 11 am on Christmas morning…sleep deprived I guess. Haven’t seen 2 of my four kids or their Kiddies….I just can’t handle the excitement of it all and don’t want to be a party pooper so I’ve just stayed home. We did host…[Read more]

  • ….that’s so good that you have some great hobbies and watercolours to get back into NanaJane…..I’ve been finishing up a wee quilt just tonite for my granddaughter and also have been knitting up some ‘cowls’ ….it was a quiet Christmas here, we invited no one to visit nor did we visit anyone as we prepare for transplant ….I am now listed and…[Read more]

  • …..so sad to read Serena’s writings.  Fight or flight ….when we are chronically ill as much as we want to try to keep exercising and keep up with daily in home jobs it does become very difficult and so very tiring in and of itself.   As we prepare our move to Toronto for transplant I am somewhat worried about the physio that i will attend 3 x…[Read more]

  • Sandra Vanzyl posted a new activity comment 2 years, 2 months ago

    Hi Charlene, I thought I’d leave you my cell phone number in the event we can meet up for coffee, lunch or even dinner, whatever works for you …343-543-4565 …I have 24/7 unlimited text and talk within Canada ….hope to hear from you soon …Sandy 😊

    • I would love that @sandravanzyl! Let me take a quick look at my calendar to see when I am in Toronto next, I believe its mid-January and then I’ll get in touch with you. I’d love to grab coffee or have lunch, that sounds wonderful 🙂 Did you have a nice holiday? I bet you’re busy preparing for your move to Toronto now? Take care and hopefully see…[Read more]

      • …Hi Charlene, quiet time here this Christmas , I haven’t left the house since Christmas Eve LOL and slept until after 11 am on Christmas morning…sleep deprived I guess. Haven’t seen 2 of my four kids or their Kiddies….I just can’t handle the excitement of it all and don’t want to be a party pooper so I’ve just stayed home. We did host…[Read more]

  • Sandra Vanzyl posted a new activity comment 2 years, 2 months ago

    Hi Delores, when you are on FB we can chat like we did before …..maybe text me when you are able to be on and I will go on and then we can chat again…..it was nice when we did….xoxxxoxo. 343-543-4565

    • It is so wonderful to witness friendships and support being offered to members of this forum. Reminds me what a special group of people this is!
      Charlene.

  • Sandra Vanzyl posted a new activity comment 2 years, 2 months ago

    Hi Delores , Merry Christmas ….we had a quiet day on Christmas, haven’t even opened our gifts yet as of this morning. I am listed now and we are moving to Toronto on January 11th….will meet the surgeon on the 14th and start physio probably on the 15th……I sure hope that I don’t have to wait months for the transplant ….I’m so tired right…[Read more]

    • Hi @delores-overby, so nice to hear from you as always! Happy Holidays – did you enjoy the last few days? Thanks for the update on how you’re doing, I think of you often. I will keep my fingers crossed that your results in January are okay and that you continue to feel better than you did earlier this month. Do you think you had some type of…[Read more]

      • Hi Delores, when you are on FB we can chat like we did before …..maybe text me when you are able to be on and I will go on and then we can chat again…..it was nice when we did….xoxxxoxo. 343-543-4565

        • It is so wonderful to witness friendships and support being offered to members of this forum. Reminds me what a special group of people this is!
          Charlene.

    • Merry Christmas @sandravanzyl! I hope you had a nice holiday and so glad to hear you’re listed now – what wonderful news, albeit, likely scary too? Glad to hear you’ve made arrangements to move to Toronto for the time being and while you’re waiting for lungs. We should definitely grab coffee sometime when I am in the city, although I know you…[Read more]

      • Hi Charlene, I thought I’d leave you my cell phone number in the event we can meet up for coffee, lunch or even dinner, whatever works for you …343-543-4565 …I have 24/7 unlimited text and talk within Canada ….hope to hear from you soon …Sandy 😊

        • I would love that @sandravanzyl! Let me take a quick look at my calendar to see when I am in Toronto next, I believe its mid-January and then I’ll get in touch with you. I’d love to grab coffee or have lunch, that sounds wonderful 🙂 Did you have a nice holiday? I bet you’re busy preparing for your move to Toronto now? Take care and hopefully see…[Read more]

          • …Hi Charlene, quiet time here this Christmas , I haven’t left the house since Christmas Eve LOL and slept until after 11 am on Christmas morning…sleep deprived I guess. Haven’t seen 2 of my four kids or their Kiddies….I just can’t handle the excitement of it all and don’t want to be a party pooper so I’ve just stayed home. We did host…[Read more]

  • Hi Charlene, I do hope you know that your employer cannot let you go because of your illness and they have to keep paying your benefits while you work through this IPF, are you looking into transplant at this point, as you know I am and have all my assessments done all with great results (meaning there is nothing else wrong with my body !) and my…[Read more]

  • Sandra Vanzyl posted a new activity comment 2 years, 2 months ago

    I hear you, I haven’t worked for all of 2018 but then as I said earlier I’m on oxygen 24/7 so this would not even be possible …..I have very little stress now what with not working , and have worked hard to not have negativity in my life and it really does help my mental state …..

  • Hi Ginger , sounds like you’ve got some great hobbies going on…..we are truly fortunate to have crafts, hobbies, photography, art , quilting, knitting to keep us busy some days ….I try to work on something everyday but the odd day here and there I just do nothing and then I feel guilty at the end of the day….it’s almost 1 yr since I’ve been…[Read more]

  • I’m on a quilting site.   Quilt with Pat Sloan, so much happening and sharing on this FAcebook Page…you would be happy to sign up for it.

  • Sandra Vanzyl posted a new activity comment 2 years, 4 months ago

    Hi Delores…..sorry that I’ve been missing in action….some days I don’t know where the time goes …..was at physio today and will go on Friday again twice a week actually , today and last week I walked a mile on the treadmill is 28 min so I’m pretty happy about that ! How are you feeling lately…beautiful weather today and yesterday here in…[Read more]

  • Sandra Vanzyl posted a new activity comment 2 years, 6 months ago

    …I made a typo…I was apprehensive to get a second biopsy, not 2nd opinion !!

  • Sandra Vanzyl posted a new activity comment 2 years, 6 months ago

    Hi Jim, I was apprehensive when that doctor wanted to get a 2nd opinion , after many visits I finally relented and agreed (my pulmonary function was getting less) and this is when I met Dr DeBoer and she adamantly said NO to another biopsy! YAY! I’ve been dealing with this nasty gagging cough for over 15 years and I just feel so many doctors…[Read more]

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