Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Steve Daggett

Home Members Steve Daggett
show less show more
Profile picture of Steve Daggett

@steve-daggett

@charlene-marshall Greetings Charlene! Regarding meeting the donor’s family (which I’m totally open to!)… The typical policy is 6 months post op at the earliest. I can, however, write an anonymous and very redacted note, using no names and/or details about even where the surgery took place…and that I’m open to meeting them. If they decide […] View
  • Activity
  • Profile
  • Friends 2
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Sandra Vanzyl

    Sandra Vanzyl and Profile picture of Steve DaggettSteve Daggett are now friends 3 years, 5 months ago

  • Profile picture of Steve Daggett

    Steve Daggett posted an update 3 years, 9 months ago

    @charlene-marshall Greetings Charlene!
    Regarding meeting the donor’s family (which I’m totally open to!)… The typical policy is 6 months post op at the earliest. I can, however, write an anonymous and very redacted note, using no names and/or details about even where the surgery took place…and that I’m open to meeting them.
    If they decide…[Read more]

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 9 months ago

      Hi @steve-daggett, very interesting to learn about this process. I am sure it would be such an emotional experience to meet your donor’s family. Keep us posted if you choose to write a letter and/or if they reply… I’d love to hear. So glad you’re doing so well 🙂

      Charlene.

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Things to Keep in Mind When Considering a Lung Transplant in the forum Pre/Post Lung Transplant 3 years, 9 months ago

    Greetings!

    I just had a single lung transplant 3 1/2 weeks ago, and I’ve been off oxygen since the day after the surgery!

    I was in the hospital 14 days, partly because I was having some heart arrhythmia that they wanted to monitor. Otherwise I could have gone home earlier.

    The difference was dramatic! There are 16 stairs to get into our house.…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Two New Symptoms: Are They PF-Related? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 9 months ago

    Greetings Charlene!

    In response to your post, BOTH cold weather and strong scents have affected me for a long time (sounds cold up there!)

    In other news, it’s been 3 weeks ago today that I got the call from UCLA that they had a lung for me! I was out of state at the time, but I was able to catch a last-minute flight that got me there in time!…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Progression involving other organs in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 11 months ago

    Hi Janet!

    I just saw your post from 3 weeks ago. Hopefully you are doing better??

    I, myself, just got out of a 5-day hospital stay for heart arrhythmia issues, which is a common ‘tandem’ condition with PF/IPF. My heart rate was bouncing all over, from as low as 30BPM up to 150+. I have had this issue for a few years now, and have had a cardiac…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic "Surviving IPF" is More Than Just the Physical Impact of the Disease in the forum Living with Pulmonary Fibrosis: 50+ 4 years ago

    I’m sorry you’re having to navigate difficult situations with this. I’m not sure if you’re at a place in your relationship where you can ‘debrief’ the instance. In other words, are you able to sit down with her and say, “Can we talk about what happened the other day?” Sometimes removing the emotions and looking at it objectively can help. Saying…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic "Surviving IPF" is More Than Just the Physical Impact of the Disease in the forum Living with Pulmonary Fibrosis: 50+ 4 years ago

    Greetings again, Charlene!

    If relationships didn’t have ‘hiccups’ once in a while, I would question the depth of the friendship! As friends -including spouses and significant others – get closer, the walls we’ve built to protect our innermost core can start to come down, and it’s often scary and painful. As a very wise man once said, “iron…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic "Surviving IPF" is More Than Just the Physical Impact of the Disease in the forum Living with Pulmonary Fibrosis: 50+ 4 years ago

    I, too, have had several friends and family members talk about their life situations and then end the conversation with, “but who am I to complain…YOU’RE the one with the terminal disease!”
    I am not a complainer, nor do I infuse conversation with my disease (unless directly asked), but people create their own barriers…possibly as a way to…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Dealing with Chemicals at the Hairdresser in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years ago

    Strong odors have been the bane of my existence for several years. While I don’t frequent hair salons (I’ve been shaving my head for several years), I do often accompany my wife at nail salons. I usually have to sit next to the door (if it’s open) or wait outside if there are several people getting nail polish applied/removed. Otherwise the odor…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett posted a new activity comment 4 years ago

    Greetings! She mentioned a ‘Steve Dragoo’. Is she referring to me? I don’t recall talking about herbal supplements 🙂
    Maybe it’s the lack of oxygen!

    View Conversation
    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years ago

      No, you are absolutely right @steve-daggett! So sorry, I tagged you by error and meant to tag @steve-dragoo! I didn’t realize how close your names are 🙂 Steve, do you mind also sharing the herbal supplements you use with @barbara-haight-wolfer? Thank you!

      • Profile picture of Steve Dragoo
        Steve Dragoo replied 4 years ago

        Hi Charlene – I am not sure how to tag someone on PF yet. I posted those supplements under the Metformin thread but let me know if Barbara needs them posted directly somewhere. Happy to help…. SteveD

        • Profile picture of Charlene Marshall
          Charlene Marshall replied 4 years ago

          You’re wonderful @steve-dragoo thank you! I hope @barbara-haight-wolfer can see you response. Here is the link for you Barbara: https://pulmonaryfibrosisnews.com/forums/forums/topic/metformin-useage-as-treatment-for-ipf/

          If you’re interested Steve, to tag someone you just type @ in front of their name and a list of names depending on the letter…[Read more]

          • Profile picture of Steve Dragoo
            Steve Dragoo replied 4 years ago

            @charlene-marshall – thanks I see it works… @steve-dragoo Hahahaha

          • Profile picture of Barbara Haight Wolfer
            Barbara Haight Wolfer replied 3 years ago

            I am new on this forum and am not sure how it works. Thank you all for leading me to sites.

            • Profile picture of Charlene Marshall
              Charlene Marshall replied 3 years ago

              Hi @barbara-haight-wolfer, welcome!
              I know the platform can be a bit difficult to navigate at first but basically check out this page first: https://pulmonaryfibrosisnews.com/forums/ .. this is where all the topics and discussions take place and you can find what you’re interested in reading about in the link I shared with you, then just click…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Symptoms of Laying Flat with Pulmonary Fibrosis. in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago

    Hi Charlene!

    You must be either in Britain or Australia? (Celsius VS. Fahrenheit) But I know that’s hot!

    Regarding puffers/inhalers, before my diagnosis my doc thought I might have asthma. We tried several types of puffers, but to no avail. Probably tried 6 over 2 years. Nothing helped.

    In the morning I just ride it out. The cough medication…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Symptoms of Laying Flat with Pulmonary Fibrosis. in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago

    Once I was awakened (still half asleep) thinking I was at the beach on a windy day. Turns out my cannula was blowing in my ear!

    My pulmonologist prescribed Tessalon Perles as needed for coughing, and it seems to help. I don’t take it every day.
    https://en.wikipedia.org/wiki/Benzonatate

    I typically fall asleep propped up by 2 pillows, but once I…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Symptoms of Laying Flat with Pulmonary Fibrosis. in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago

    I rarely am able to lay flat. I typically sleep with at least 2 pillows, sometimes 3. It’s too uncomfortable to lie flat on my back. I either have to elevate my head/upper body and/or lay on my side.

    When I first lay down I typically have a few coughing episodes, then it calms down. I’ve resorted to having to take an OTC sleep aid (like ZZZQuil)…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett posted a new activity comment 4 years, 1 month ago

    Just sent another reply!

    View Conversation
    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 1 month ago

      Thank you @steve-daggett! So appreciate it – I didn’t want to miss out on the valuable insights and information you so kindly shared with all of us 🙂
      Charlene.

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Increased Sensitivity to Scents After Being Diagnosed with IPF. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 1 month ago

    No problem at all!
    I was diagnosed in February 2015 – but quite by accident. I’ll explain later.
    About 10-12 years ago I started developing a persistent dry cough. After about a year I finally went to my PCP to check it out. He thought it was probably some type of asthma, so we tried an inhaler. Didn’t work. After 4-5 months we tried another (diff…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett posted a new activity comment 4 years, 1 month ago

    No problem! I’ll send another reply in a bit. I remember most of what I said! 🙂

    View Conversation
  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Increased Sensitivity to Scents After Being Diagnosed with IPF. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 2 months ago

    Thank you!

    No problem with sharing that my FEVs have been in the low 40s. They’ve been under 50 since November. I do try to get out and about often, but if there are stairs and/or inclines (even minor ones) I have to take them very slowly – and then it takes about 4-5 minutes to “catch up”: coughing, then waiting for my O2 saturation to get back…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett and Profile picture of Charlene MarshallCharlene Marshall are now friends 4 years, 2 months ago

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Increased Sensitivity to Scents After Being Diagnosed with IPF. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 2 months ago

    Yeah, a/c has been a cough trigger for a long time! Smoke of any type is avoided at all costs. Even the slightest physical activity has become a cough trigger (walking short distances or up a flight of stairs)
    I had the option of Seattle (University of Washington) or UCLA in Los Angeles. I have a better living/accommodation in the LA area, and I…[Read more]

  • Profile picture of Steve Daggett

    Steve Daggett replied to the topic Increased Sensitivity to Scents After Being Diagnosed with IPF. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 2 months ago

    Appreciate your posts, Charlene!

    Even before I was diagnosed (3 years ago), strong scents (perfume/cologne, smoke/vapor of any kind) always trigger a coughing fit for me. Also, when air conditioning (car, house, etc.) kicks in, coughing ensues. I have to avoid the cold food/freezer sections in grocery stores because the cold air triggers…[Read more]

  • Load More
Profile Photo Winnie Rammage Hagenah Profile Photo Dave-Wendy Barrer

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Sam’s Tips for Traveling with O2 by Christie Patient
  • Hyperbaric oxygen therapy by Natalie Mondor
  • Stem cell treatment experiences by John M
  • Rolling cart by Jacqui
  • When You Don’t Want to Talk About PF Appointments by Charlene Marshall

Recent Replies

  • When You Don’t Want to Talk About PF Appointments
  • Sleeping on a slope
  • Sleeping on a slope
  • When You Don’t Want to Talk About PF Appointments
  • When You Don’t Want to Talk About PF Appointments

Members

Newest | Active | Popular
  • Profile picture of Derek Starkiss
    Derek Starkiss
    Active 1 hour, 7 minutes ago
  • Profile picture of Gayle Kaune
    Gayle Kaune
    Active 2 hours, 12 minutes ago
  • Profile picture of Margaret
    Margaret
    Active 3 hours ago
  • Profile picture of Jacqueline Meisinger
    Jacqueline Meisinger
    Active 4 hours, 27 minutes ago
  • Profile picture of joyce
    joyce
    Active 4 hours, 36 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?
Verify you are not a robot

Forgot your details?

I remember my details

Create Account

Verify you are not a robot