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Lorraine

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@lorraine

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    Lorraine replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 2 years, 5 months ago

    Hi @rod-danner:  Thank you and yes, I can see how this could lead to a “financially damaging path” — you forgot to mention car play. LOL.

     

  • Profile picture of Lorraine

    Lorraine replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 2 years, 5 months ago

    I am a newbie iPhone convert, and do see an Apple watch in my future.

    I only made the switch to an iPhone on October 8th.  I have been retired for six years and during that time, I was using an old school smart-less flip phone. I needed to reboot, I was an emergency manager before retiring — and used a Blackberry, Nextel Direct Connect, cell…[Read more]

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    Lorraine replied to the topic Have you tried a Salt Room? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 8 months ago

    Hi Charlene:

    Thank you for your insight and for sharing your Salt Room experience. Also, for telling us about the salt inhaler, that is new to me.

    And yes breaking up mucous and relaxing are excellent benefits.

    Did you speak to your pulmonologist prior to using the salt room?

    Wishing you a wonderful, fun and safe trip, enjoy that sea…[Read more]

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    Lorraine replied to the topic Have you tried a Salt Room? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 8 months ago

    @tarzan

    Hi Tony:

    I like the natural way of breathing salt air too and think it is safer.

    I live inland and a few miles from the Atlantic Ocean and enjoy taking walks along the boardwalk.

    The thing about these rooms  that concern me is what else are we breathing? Are the room vent systems cleaned properly? Are the rooms/methods regulated? I…[Read more]

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    Lorraine started the topic Have you tried a Salt Room? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 8 months ago

    Promising or Placebo? Halo Salt Therapy: Resurgence of a Salt Cave Spa Treatment

    A spa day. We all need one. It’s meant to relax and revitalize the body and mind, but what about the lungs? A new trend increasingly found at modern spas is halotherapy, or salt therapy—breathable salt particles intended to improve breathing. There has been news b…[Read more]

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    Lorraine posted a new activity comment 2 years, 8 months ago

    Thank you Denny!

    I will look into these herbs.

    With appreciation and best wishes.

    Lorraine

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    Lorraine replied to the topic PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As 2 years, 8 months ago

    Hi Ed: Thank you for your reply. Best wishes to you and your wife. Lorraine

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    Lorraine replied to the topic PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As 2 years, 8 months ago

    Hi Linda:

    I think I am a bad test taker. Also, I do not follow instructions well. Perhaps because I am distracted/not concentrating, because I am in panic mode when taking the PFT.

    One Respiratory Tech is very persistent and then the results are better.

    Lately, I am experiencing shortness of breath, primarily when it is humid and walking hills,…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As 2 years, 9 months ago

    @edknn

    Hi Ed: Was your wife doing anything different that could have help the improved numbers. For example, Pulmonary Rehab or using Voldyne 5000 Incentive Spirometer. I hope she continues to do well. Lorraine

  • Profile picture of Lorraine

    Lorraine replied to the topic PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As 2 years, 9 months ago

    Hi Linda! Good news your numbers went back up. Do you attribute it to anything that you have been doing differently during this period? Wishing you the best, Lorraine

  • Profile picture of Lorraine

    Lorraine replied to the topic PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As 2 years, 9 months ago

    @deliassen

    Hi Denny: That is good news about your test results. Can you tell me the names of your supplements? Thank you, Lorraine

  • Profile picture of Lorraine

    Lorraine replied to the topic Responding to "How Are You Feeling" as an IPF Patient. in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 9 months ago

    Thank you Charlene for tagging me. Wishing you the best.

  • Profile picture of Lorraine

    Lorraine replied to the topic Responding to "How Are You Feeling" as an IPF Patient. in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 9 months ago

    Hi Christine: And yes this forum and its members are very helpful and supportive, bar none. And the level of information-sharing is outstanding and greatly appreciated.

    Thank you for your kind and supportive response. Unfortunately, I do not have anyone else that can step-up. So far we are doing well … and I hope and pray that I can continue to…[Read more]

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    Lorraine replied to the topic Living Our Lives in the forum Hobbies & Projects 2 years, 9 months ago

    Oh Wendy, I did check out your amazing miniature world and the adventures showcased in the soap opera blog, I was hooked. Outstanding detail. You are very talented on many levels. Your city and the citizenry must be therapeutic and joyful — and certainly enjoyed by fans.

  • Profile picture of Lorraine

    Lorraine replied to the topic Living Our Lives in the forum Hobbies & Projects 2 years, 9 months ago

    Hi Wendy:

    Yes, I easily see how the self compassion meditation exercises are a life saver.

    After a few hours of sleep last night, I woke-up startled, from a deep sleep, haunted by the disease. I reached for my laptop and played, then practiced one of the self compassion meditation exercises. That did the trick, I relaxed, and a peaceful sleep…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic How do you feel? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 9 months ago

    @patience21

    Hi Pearl: While pouring my heart out on the ‘Living Our Lives’ forum, @wendy-dirks, was kind enough to turn me on to www DOT self-compassion DOT org — specifically the Self-Compassion Guided Meditations and Exercises. That night I listened to two Guided Meditation recordings and then another two the next day. Very helpful. You may…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic Living Our Lives in the forum Hobbies & Projects 2 years, 9 months ago

    Would love to see a photo of your collection, if you would consider posting.

    Have you heard of Gulliver’s Gate? It is the Largest Interactive Miniature World On The Earth. 50,000 Sq. Ft. To Explore! And experience a massive, mesmerizing World of Miniatures. Explore 5 Continents. You may have the web site interesting. www DOT gulliversgate DOT…[Read more]

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    Lorraine replied to the topic Living Our Lives in the forum Hobbies & Projects 2 years, 9 months ago

    Thanks Mark

     

  • Profile picture of Lorraine

    Lorraine replied to the topic Living Our Lives in the forum Hobbies & Projects 2 years, 9 months ago

    Thank you so much Wendy. I really appreciated your input and information-sharing. I have looked to the link and like what I read. And when I practice and follow the mindfulness techniques of Dr. Neff, I will follow your lead and put my hand over my heart.

  • Profile picture of Lorraine

    Lorraine replied to the topic Living Our Lives in the forum Hobbies & Projects 2 years, 9 months ago

    I too am struggling. My disease is progressing, slowly but none the less, progressing.

    I can’t get this disease out of my heart and head. I was in a terrible funk for most of the summer and started to withdraw, putting myself in Social Isolation. At times I called a free mental health counseling service. Sometimes several times in a day. It…[Read more]

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