Biography

Name

Lorraine

Nickname

lorraine

Gender

Female

Relationship

Patient

Short Bio

In 2016 I had a chest xray and was told I had ILD. I wasn’t surprised since I was caught up in the 9/11 plume and worked in the vicinity of the World Trade Center (WTC) attacks and for 10 years after. I have been going to the WTC Clinic at Bellevue Hospital, since February 2017. I had another CT chest scan in December 2018 and it showed progression. Soon after I started going to Mt Sinai National Jewish Health Respiratory Center.

 

 

Type of Diagnosis

IPF

Treatment / Medical Facility

WTC Clinic at Bellevue and Mt Sinai National Jewish Health Respiratory Institute

Current medication regimen

No medication currently. I work out daily.

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

Eat healthy, exercise, take supplements.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

2016 or earlier

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