Marti
Forum Replies Created
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Hi GratefulDeb,
I think about my end of life situation for a long time. Wondering and not getting info is the worst. I found a topic on this and got a book that was recommended. It gave me so much solace. I cried through the first 5 chapters. I do recommend it: Pulmonary Fibrosis JOURNEY: A counselor and Fellow Patient Walks with You by Kim Fredrickson
I got it on Amazon on my Kindle app. First of all, be kind to yourself. I have been more focused on what I want and what I will need. I have come to understand what I am afraid of and what can help.
You can talk about any of it here.
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Yay for Neti Pots!
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Wow! I’ll keep that “handy tip” in mind if my nose gets bloody or scabby! Thanks.
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Good to know. Thanks
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Interesting! Good idea.
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Hi Karen,
I’ve had these same concerns. There is a book that talks about a lot of issues surrounding Pulmonary Fibrosis. I have the Kindle addition as well as the Paper back: Pulmonary Fibrosis JOURNEY by Kim Fredrickson. I have the same issue of forgetting to turn down when sitting, or turning it up when moving around. The book covers all kinds of things and mostly how to be patient and kind to yourself. Well being is your biggest asset with this difficult challenge. I find my blood oxygen drops very quickly when I start walking around. It takes a bit to recover from exercise. I haven’t found what works for me to keep on walking at any pace right now so I am still working on that. It can be looked at as a problem but I believe it is a normal process of adjustment. There are so many things that take up your time but it is OK because it is all YOUR TIME and please be kind to yourself.
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Thank you so much for sharing your experience. I have always been wondering what to expect and the fear of it is worse than dealing with it. I am happy to find your post and will get the BOOK your recommend.
I would like to be in a position of having my paperwork in order and bring all those who have deep meaning to me close and properly thanked for their kindnesses.
God bless you. You have been a gift to me.