marylin-pusanik
Biography
Nickname | marylin-pusanik |
Year of Birth | 1939 |
Gender | Female |
Location | California |
Relationship | Patient |
Short Bio | I was diagnosed with IPF 4 years ago – just about the time the FDA gave approval for the 2 drugs used for this disease – Esbriet and Ofev. After weeks of trial & error, I finally ended up on Ofev 100mg once a day. Not the recommended full dosage, but better than nothing. I am an active person, walk 3 miles a day, 5-6 days a week. My PFT tests remain stable. There are no support groups where I live, so I am very happy to read the posts in this newsletter. It is helpful. This latest post regarding the Class 4 cold laser therapy certainly has my attention and I will do some research. I’m grateful to be a part of this community. |
Type of Diagnosis | IPF |
Treatment / Medical Facility | UCSF initially, now local pulmonologist |
Current medication regimen | Ofev 100 mg 1xdaily |
Lung transplantation status | ineligible |
Supplemental Oxygen | no |
Best advice for PF symptom management | Exercise as much as possible. A positive attitude – good family/friend support. |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | PF News Website |
How long have you or the person that you are caring for had PF? | 4 years |
Privacy Policy and Terms of Use | I agree |