@panamer69
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eileen d koster replied to the topic Working after transplant in the forum Pre/Post Lung Transplant 1 year, 9 months ago
Dear Don, I had a right lung transplant on Mar 25, 2021. Before I was diagnosed with IPF in 2016 and went on supplemental O2 (3>4 with exercise) in June 2020. In late Sept 2020 I started the test to get on the transplant donor list.
I live in Los Angeles and receive my care at Cedars Sinai. I am 75 in in good health and weight erxcept for IPF.…[Read more]
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eileen d koster replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago
Have these herb from WEI or other sources been okayed by your pulmonolgist?
Eileen Koster
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Douglas k Freeman and
eileen d koster are now friends 2 years, 1 month ago
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eileen d koster replied to the topic Portable Oxygen Concentators in the forum Diagnosis Information and General Questions 2 years, 2 months ago
Hi Pete,
If you live in the U.S. or Canada
Call Robert Scott at Inogen One. If you have Medicare you can get a concentrator
thru your Pulmonologist and medicare. Either way you will need a precription for
a concentrator as O2 is considered a medicine. I don’t have his ph number but you
can Google InogenOne.
Best, Eileen
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eileen d koster and
Mark Koziol are now friends 2 years, 3 months ago -
eileen d koster posted an update 2 years, 5 months ago
Hello, I have not posted before but I would like some guidance. On Aug 24, 2020 I go for a lung transplant consultation. This is a first step in the process. Are there questions I should ask? Should I record the consultation if allowed? Thanks for the help.
Eileen Koster-
Hello Eileen, let the medical team explain the process. Take it in as they explain everything. Your questions will generate from the information they will give to you. I am expecting they give you a binder that will cover the process from evaluation to recovery. You will be overloaded with info. Be a sponge. After this visit and after you have…[Read more]
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eileen d koster became a registered member 2 years, 6 months ago
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Hello Eileen, we are delighted to have you as a member of the pf forum. Welcome!
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