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eileen d koster

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@panamer69

Hello, I have not posted before but I would like some guidance. On Aug 24, 2020 I go for a lung transplant consultation. This is a first step in the process. Are there questions I should ask? Should I record the consultation if allowed? Thanks for the help. Eileen Koster View
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    eileen d koster replied to the topic Working after transplant in the forum Pre/Post Lung Transplant 1 year, 9 months ago

    Dear Don, I had a right lung transplant on Mar 25, 2021. Before I was diagnosed with IPF in 2016 and went on supplemental O2  (3>4 with exercise) in June 2020. In late Sept 2020 I started the test to get on the transplant donor list.

    I live in Los Angeles and receive my care at Cedars Sinai. I am 75 in in good health and weight erxcept for IPF.…[Read more]

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    eileen d koster replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago

    Have these herb from WEI or other sources been okayed by your pulmonolgist?

    Eileen Koster

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    Douglas k Freeman and Profile picture of eileen d kostereileen d koster are now friends 2 years, 1 month ago

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    eileen d koster replied to the topic Portable Oxygen Concentators in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 2 months ago

    Hi Pete,

    If you live in the U.S. or Canada

    Call Robert Scott at Inogen One. If you have Medicare you can get a concentrator

    thru your Pulmonologist and medicare.  Either way you will need a precription for

    a concentrator as O2 is considered a medicine. I don’t have his ph number but you

    can Google InogenOne.

    Best, Eileen

     

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    eileen d koster and Profile picture of Mark KoziolMark Koziol are now friends 2 years, 3 months ago

  • Profile picture of eileen d koster

    eileen d koster posted an update 2 years, 5 months ago

    Hello, I have not posted before but I would like some guidance. On Aug 24, 2020 I go for a lung transplant consultation. This is a first step in the process. Are there questions I should ask? Should I record the consultation if allowed? Thanks for the help.
    Eileen Koster

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 5 months ago

      Hello Eileen, let the medical team explain the process. Take it in as they explain everything. Your questions will generate from the information they will give to you. I am expecting they give you a binder that will cover the process from evaluation to recovery. You will be overloaded with info. Be a sponge. After this visit and after you have…[Read more]

  • Profile picture of eileen d koster

    eileen d koster became a registered member 2 years, 6 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 6 months ago

      Hello Eileen, we are delighted to have you as a member of the pf forum. Welcome!

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