Forum Replies Created

  • Patricia Jefferson

    Member
    May 28, 2019 at 12:21 pm in reply to: Posting an Update? Use a Tag To Ensure Its Seen!

    Charlene,

    I’m totally confused on how to answer a reply to my letter on GERD.  Ray King answered me but I can’ t quite figure out how to answer him!  Isn’t there just an easy “ reply “ button?  Pat

  • Patricia Jefferson

    Member
    January 11, 2019 at 11:54 am in reply to: Indigestion & Acid Reflux

    Hi Ray,

    Thank you so much for the info you have shared – I really appreciate it!  I had my upper endoscopy this morning and all the inflammation in my stomach and esophagus was almost cleared.  Probably due to the Dexilant and Zantac he prescribed a couple months back.  He recommended smaller meals and taking the Zantac right after supper so it could have a chance to work before bedtime.  He suspects that my hiatal hernia is the real problem.  I told him that I hadn’t been hearing very encouraging things about the surgery but he said a lot of progress has been made in recent years.  So I may talk to the surgeon about it at a later date.               Pat

  • Patricia Jefferson

    Member
    January 6, 2019 at 8:25 pm in reply to: Indigestion & Acid Reflux

    Hi Ray,

    Thank you for your long response  – yes I’m unfortunately aware of no late dinners and no chocolate!  Also no peanut butter fudge!  My GI doctor started me on Gaxalant and prescription-strength Zantac which seems to have helped.  The only problem is that I take the Zantac at bedtime and if my stomach decides to give the old heave ho, there go the meds.  I haven’t heard one person say good things about that fundoplication surgery so I think I’ll pass on that one.  (even though the surgeon was in my oldest son’s Boy Scout troop!). I have so many questions about this new diagnosis of PF – I can’t wait 6months till my next pulmonologist appt.  Thank you so much for sharing with me, Ray.      Pat

     

  • Patricia Jefferson

    Member
    January 3, 2019 at 11:48 am in reply to: Indigestion & Acid Reflux

    Hi everyone,

    I’m brand new, have read all your posts, and boy, can I relate!  I’ve had awful GERD for 35 years, and for many years just took lots of Tums.  Finally had to see a doctor and was on Nexium for years.  Got a Sleep Number bed, which is wonderful – I wish everyone could get one.  They gave us a good payment plan so we could afford it.  I’ve tried to eat supper early in the evening, and no evening snacking, but still have trouble with indigestion about 3 times a week, accompanied by lots of dry coughing and vomiting of supper.  I have dry coughing frequently and aspiration of acid.  I have an upper endoscopy scheduled next week and there’s talk of surgery for a lg. hiatal hernia.  I just had a HRCT and PFT  and had a followup with my pulmonologist 2 days after Christmas. She said the CT had changed very little and the PFTs were essentially the same as the ones done about 10 years ago. She asked me if I knew what had damaged my lungs so much back then and I told that lupus had attacked my lungs when I had pneumonia and I had almost died – I was given 3 IV chemo treatments of Cytoxan and then put on oral Cytoxan. Never once in all these years has pulmonary fibrosis been mentioned.  COPD is on all my medical records.  She said “There’s no evidence of COPD on your tests.  What you have is infiltrative pulmonary fibrosis.” We talked awhile and of course I’m looking up all kinds of info.  What I really don’t understand is how this could have started 10 or so years ago and I’ve been on oxygen for about that long (supposedly for COPD) and my breathing isn’ t really that different?  My arthritis is!  I just don’t understand.

    Thank you all for listening!

    Pat