I also have had ipf since 2019 and get my pirfenidone paid for by the government instead of $40,000 per year. I have a wonderful wife and family which gives me strength and do not waste my time praying however but use my hands to help others.

You are both brave and smart good luck to you

I have been diagnosed with PF since 2019 and caught covid during the holidays 2025. Luckily I was vaccinated annually for covid and took paxlovid for several days in December and it went away rather quickly. I still mask regularly and because of the vaccination and the paxlovid I do not feel that I had any further lung damage

74 yrs, Diagnosed w IPF 5 yrs ago , on pirfenidone ever since, is pretty stable but would love infos abt stem therepy plse

When you go to the hospital with an emergency, I guess you must go to the prayer room instead of the emergency room

Sorry to hear about your plight with ofev. I have been on esbriet for 5 years now and have been relatively stable and this may be a better option than just hoping or “praying” as you say.

Been on perfinidone for 5 years now and my lungs have not deteriorated very much. My life has been about 90% normal but with shortness of breath. To prevent nausea, always eat before taking , including bread or other absorbing foods. O2 still 94_95 at night on Google watch. Family, friends, cycling and not thinking about this disease all the… Read more

74 yrs, 5 yrs since my ILD diagnosis, still have lungs in decent condition, almost normal life. Exercise and remaining happy (and a good partner – for 50 yrs) also helps. Take Esbriet since 4.5 yrs-helps! good luck

Your interesting post mirrors my thoughts ex as a Freethinker I do not depend on any of the many gods out there and have the courage to face my fate as a guy who raised a beautiful family, 50 yrs married and will return to nature in an ecological resting place. Lots of love to all…

very encouraging post, as a freethinker I am practical facing adversity , have a great wife of 50 yrs etc helps me on.

Brain imaging shows dopamine as a response to belief. The same dopamine regardless of what god is believed, the same chemical summoned by similar emotions. As far as the brain’s location of reason and logic, scientists correlate it with studies that have shown logic and reason decline corresponds with the rise of religious belief.…

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As a freethinker I realize that It is obvious there is a spirit in our brains, as there have been about 2800 man-made gods in history. So there is a place for meditation or “god” in our brains. This latter fact is proven by MRI scans of brains showing increased blood flow in frontal lobes and language areas while praying, yoga,…

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my Google watch 2 records Oxygen well on a consistent basis as I also test on my finger and they are very close to one another

i have had IPF for four and a half years now started taking Esbriet or pirfenidone immediately and my condition has been stable. And I would encourage you to get on these anti-fibrotics ASAP Good luck

hope you are still doing well Mark That was a very touching story you had. As for me, being a free thinker i depend on science to come to my aid and indeed pirfenidone has been relatively easy for me to take and has protected me very well for the past 4 and 1/2 years. At the age of 74 i am mentally ready to face a return to stardust and glad…

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Alex i really understand where you are coming from as I got diagnosed with IFP 4 1/2 years ago but I got on the antifibrotics immediately and I am so glad I did as i am still in relatively good shape. can go up several flights of stairs by taking pauses or go for walks and nobody notices me breathing more heavily ex in cold weather…

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hello George your story touches me a lot because, just like you, i am a free thinker, since about 20 years ago after years of deprogramming from my massive childhood Catholic indoctrination (almost became a priest) yikes. I’m prepared to return to Stardust and do not worship any of the 2,800 gods of history, nor worry abt being one of +90%…

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Firstly, I disagree with rik who says that mass are no good against viruses which is completely wrong. We always were at least NK94 and preferably N95 masks whenever in crowded areas, stores airports, especially airplanes. No colds whatsoever in 4 years almost and we avoid big parties. Our entourage all know that I have IPF and we trust them… Read more

I am in the same position as you but my strong belief in evolution and the good of other people as proven in sociobiology helps me face life with a strutted disease and not have to believe in one of the 2,800 man-made gods of History

Hello Annette, I read most of the replies and I would just like to add that I have had IPF for two and a half years and have been taking Esbriet 3x/day for most of the time. I push myself to do cardiovascular sports as much as I can such as cross-country skiing cycling skating hiking etc All in an effort to keep my lungs working.So far I am not… Read more

I have been on esbriet for 2 years now and must admit that I take about 6 glasses of wine a week avg and have been lucky to have good liver tests. the one score which has being going down is DLCO, FVC etcetera have been fine do lots of sports and eat well hopefully I will stay healthy for several more years.

<span style=”color: #303030; font-family: open sans;”><span style=”font-size: 13px;”> I was diagnosed in August 2019 and have been taking Esbriet since Dec 2019.  ”Still here and kicking, ” like Karen  have less energy than before, but happy to have this forum to turn to for information and support, as well. Do lots of outdoor sports to keep… Read more

I agree with Charlene that cold air hurts the lungs when I hike, cross ctry ski , skate etc in cold weather.

I am 70, have been on Esbriet since December 2019. Moderate but not overly bothersome side effects as mentioned above, thanks to evolution. My lung condition has deteriorated 10% in past yr but I still have 80% lung capacity and can still do Sports which I believe are important to help us breathe easier. When on Esbriet the sun is not your… Read more

Have been taking Esbriet now for one year. Briefly, you must always take it with a meal or a big snack or the nausea headaches tiredness Etc increase. Luckily evolution permits me to have a 90% normal lifestyle so far. Just went cross-country skiing today for the first time this year and noticed I had to stop more frequently to catch my breath… Read more

I am very thankful to nature and evolution as my side effects resemble yours but to a much lesser extent. I always take a meal or a big snack beforehand and lots of water during the day but not at night as I would be waking up making two many trips to the washroom. Have you contacted the company nurses who do follow up I find they are very… Read more

<span style=”color: #303030; font-family: open sans;”><span style=”font-size: 13px;”>I have been taking Esbriet for +6 mths since Dec 2020. An article in a prestigious French pharma journal influenced me not to try Ofev . I have had mild side effects 6 months after my full daily dose: insomnia, tummy upset, frequent bathroom visits and mood… Read more

have been taking Esbriet for 2 months now, few mild side effects (grumbling tummy, tired) also take about 6 glasses wine/week and 2 mthly blood tests have been fine. Will know if working at my March 3rd RDV, fingers crossed!

69 yrs young, in top shape until now, I will be starting Esbriet later this week and am quite nervous. Was diagnosed early Fall w IPF. Was going to take Ofev until I read this article (in French) from a VERY respected non pharma influenced, European website;

https://www.prescrire.org/Fr/202/1843/56008/0/PositionDetails.aspx

Basically it… Read more

Stu is right , having latest replies at start would be better and save time scrolling down