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  • Covid pulmonary fibrosis

    Posted by Penny Spano on January 16, 2025 at 5:20 am

    I got pulmonary fibrosis from Covid in June of 2020. At the time nothing at all was given to me to help. I was forced into the vaccine that caused me to get sicker each time and couldn’t continue to take ofev. Now in January of 2025 I’m starting to have problems again. Does anyone else have pulmonary fibrosis from Covid? What medications have you tried? I’ve changed a bunch of medication several times and nothing ever calms down because it’s always changing with the other problems covid has caused. Like my brain and injuries from falling. I would appreciate anyone that has information on this topic. I don’t have any family history of pulmonary fibrosis or any lung problems. I had pneumonia when I went to the hospital that’s is where I caught Covid. That was all the was the only lung problem I’d ever had at that point in my life. Im just wondering if anyone has heard or has more information about it yet. Anyone please help me out.

    Paul Caden replied 2 weeks, 6 days ago 4 Members · 3 Replies
  • 3 Replies
  • Samuel Kirton

    Member
    January 17, 2025 at 4:08 pm

    Hi Penny,

    Sadly a Post-COVID-19 diagnosis of pulmonary fibrosis was not unusual. I pulled this info for you from the National Institutes of Health: https://pmc.ncbi.nlm.nih.gov/articles/PMC10199290/#:~:text=PC19%2D%20PF%20can%20be%20caused,female%20sex%2C%20should%20be%20considered.

  • cpfeln

    Member
    January 17, 2025 at 4:42 pm

    I got COVID the end of December 2019. I was treated for several lung infections. My primary care sent me to a pulmonologist after 8 months of COVID shots and boosters. I had the normal testing and a HRCT. The pulmonologist diagnosed me with pulmonary fibrosis. Six months later I had a follow up HRCT where they discovered I also had emphysema. It is CPFE combined pulmonary fibrosis with emphysema. This diagnosis resulted in my going on oxygen 24/7.

    On medication, I am on Trelegy 200mg, Prednisone, and CELLCEPT or mycophenolate 2000mg a day. I also have had autoimmune since my 20’s. The CPFE diagnosis freaked me and my family out as the prognosis is 1 to 3 years. It’s 2025 and although I feel short of breath without oxygen the prognosis now looks more like 10 years. New drugs are being used every day. I’m pretty sure it was COVID that set all of the lung issues in motion. I was never short of breath or coughing before that.

  • Paul Caden

    Member
    January 18, 2025 at 7:58 am

    I have been diagnosed with PF since 2019 and caught covid during the holidays 2025. Luckily I was vaccinated annually for covid and took paxlovid for several days in December and it went away rather quickly. I still mask regularly and because of the vaccination and the paxlovid I do not feel that I had any further lung damage

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