Paulette Daniels
Forum Replies Created
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I don’t have clubbing in my fingers (I don’t think), but for years a couple of my nails have grown weird, turning down at the ends in the middle. I have wondered if this is clubbing. Also, I thought I had an ingrown toenail on my big toe, but its not. It did hurt. I suppose it could be clubbing.
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I can hardly walk more than about 15 steps for the last 3 weeks. Never thought it might be the OFEV. I have only been on it for about 3 months. Doctor as usual, has no idea and no suggestions to help
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I took Esbriet last year for several months. At first it was fine, but as the dosage increased, I had more and more side effects – passing out, vomiting, fatigue, nausea, headaches, rashes, loss of appetite and more. When I was at full dosage, I could no longer tolerate it. My pulmonologist kept giving me drugs to counteract the side effects. I met with my GP and we decided it was better if I stopped. Honestly, I had forgotten how good it felt to not take that drug. It has been some months now and we are going to try Ofev. I do pulmonary rehab 3 times a week, eat healthy and feel good. I am on oxygen 24/7 at 5L when active during the day (higher during exercise). Best of luck with this. Sometimes you have to make the hard decisions.