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ARMY PETE posted an update 3 years, 8 months ago

@mark-koziol
hey mark. seems like i am using my concentrator more then before and that happend in the last few weeks.its ok after sitting a while but as soon i do something , even light stuff, it drops down to the low 80s or less.but i recover quickly.cough more ,sometimes dry,sometimes with mucus.next appt. is in october .dont know how i will…[Read more]
- Mark Koziol replied 3 years, 8 months ago
  
  Hello Pete, sorry about the delay in response. You may be experiencing some sort of infection. I would notify your doctor of your current symptoms. I hate the blow test as well. I go next week for mine. I have my quarterly transplant appt next week and this test still gives me anxiety. Do your best on the test but also take your time. Don’t let…[Read more]
ARMY PETE posted an update 3 years, 9 months ago

@stulef I agree with your suggestion
ARMY PETE posted an update 3 years, 9 months ago

@ohiocher slowly falling apart LOL
ARMY PETE posted a new activity comment 3 years, 9 months ago

have a great time.finally .I will be” suffering “with you here in the sunshine state.lol

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ARMY PETE posted a new activity comment 3 years, 9 months ago

I am on oxygen.a six minute walk would drop me down to 80 0r less..thats with out ox. I was told to hook up when I go below 88.thats seems to be happening a lot.i have a portable tank but have not used it outside YET.hope this helps?your dr.is wise.quality is the most important thing for me.tried ofev but it took my quality down to the…[Read more]

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ARMY PETE posted an update 3 years, 9 months ago

@ohiocher hi .
I was diagnosed about the same time.gave up on ofev with too many bath room visits and close calls .I find myself on oxygen now .every thing got worse in the last 2 month……..are you on oxygen ?
peter
ARMY PETE replied to the topic How do you feel? in the forum Diagnosis Information and General Questions 3 years, 9 months ago

darn it ,cant see what I am typing

nagging
ARMY PETE replied to the topic How do you feel? in the forum Diagnosis Information and General Questions 3 years, 9 months ago

hey Charlene,

you are never nqagging.lol

peter
ARMY PETE replied to the topic How do you feel? in the forum Diagnosis Information and General Questions 3 years, 9 months ago

thank you for caring.

the air in the house is ok as far as i knowissues with coughing .we keep the ac on.showering causes even with the exaust fan on.were in fla.air is probebly better the in a big city.for what its worth, i just went outside to unplug my charger and put it into my shed.my oxy.went to 76.my wife is giving me hell for not taking…[Read more]
ARMY PETE replied to the topic How do you feel? in the forum Diagnosis Information and General Questions 3 years, 9 months ago

hi to every one

I have not been on for a while .I can attest to the unfortunate fact that I have the same experience.what concerns me is the speed of the symptoms progression.my next appt.is in October.it almost feels like a waste of time to go only to hear what I already know.with in the last 3 month or so I have been on oxygen , for exertion…[Read more]
ARMY PETE joined the group Research and Development 3 years, 10 months ago
ARMY PETE's profile was updated 3 years, 11 months ago
ARMY PETE and Jan Riche are now friends 4 years ago
ARMY PETE posted an update 4 years ago

seems like i all ways mess up when and where to post comments and or updates or messages..i am much more comfortable wth direct messaging like e mail.maybe i am getting to old/confused to navigate here .i never know who reads or gets my comments .lol. just gone stay on the sidelines for a while .
- Charlene Marshall replied 4 years ago
  
  Hi Army Pete, you did a great job! 🙂 You posted as an update, instead of in one of the forums but if you’re just chiming in generally to say hello or provide an update, then this section is perfect to do that! It’ll show up in the activity feed that you’ve posted an update, so we can read and say hello. This platform can be a bit tricky to…[Read more]
ARMY PETE posted an update 4 years ago

@kmoel327 i am allways curious as to how difficult it is to survive past that magical 2-3 year prediction of survivebility.i was diagnosed 3/2017
- Charlene Marshall replied 4 years ago
  
  Hi @peter, this is a good question, although hard to answer I think because all of us seem to progress so differently with this disease. I think that is what makes it so difficult for physicians; the course of the disease progression isn’t the same from patient to patient. Anyway, I don’t have an answer to your question but I wanted to share…[Read more]
Jeannie and ARMY PETE are now friends 4 years ago
ARMY PETE posted a new activity comment 4 years ago

hello again.i am wondering about your doctor.stay away from kids?????what if you had kids ,does he want to rid of them? i ave a cat and i am ok i .get a litle out of breath when i clean her litter box.i also cough less at night.takes a few minutes to adjust to laying down ,cough more then for a fea min.
good luck
peter

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- Jeannie replied 4 years ago
  
  I am a substitute teacher and he is afraid that I will catch something.
ARMY PETE replied to the topic A condition with no clear diagnostic criteria – Idiopathic in the forum Diagnosis Information and General Questions 4 years ago

hi charlene , we “spoke before”so far my diagnosis is ipf.honey coam slowly progressing.ofev made me sick after 7 weeks i quit it.scared to try the other drug.dont want to go through living in bathroom again.as of late , i am out of breath making the bed or taking out the garbage ,even showering is difficult.i have ptsd .i am a vietnam vet and…[Read more]
ARMY PETE posted an update 4 years, 1 month ago

@johnl i had been on ofev for 7 weeks or so and i started living in the bathroom.going shopping was frightfull……..i quit.
how ever , my dr. told me and this forum platform.agrees i think, that no two patients are alike and some people tolerate either of the two major”pills”. you just gone have to try.
peter in palmetto
- John L replied 4 years, 1 month ago
  
  Thanks for your comment Pete. I will see how it goes? Hope I can tolerate it? Sorry it didn’t workout for you. I’m hearing many experience diarrhea with the Ofev & counter it with Imodium…this is all new to me so I will try the little they have to prescribe to slow it down some. Hopefully, I can handle Ofev or Esbriet? Good luck…[Read more]
ARMY PETE posted a new activity comment 4 years, 1 month ago

I am 71 and I am not taking a risk with concidering a transfer.way too many requirements .besides , I would rather have a younger person get a lung.also ihate waiting and die before ,if at all,they have lung available.but I am content and LIVE for now.im not a pessimist ,just a realist.its all good (sort 0f lol)

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