Penny Rylee

Thank you for your response to the length of time people can live with IPF.

You said your mom lived for ten years. Can you describe some of the things she did that allowed her to live that long?

Was she she on Esbriet or Ofev?

And you sound like you are doing well. What are some of the things you recommend doing to stay healthy?

I’m trying to…[Read more]

I believe the two-week study at UC Davis (in conjunction with UCSF) used the Teavigo Green Tea Extract from Healthy Origins. I got it through the internet and am taking four 150 mg daily as they did in the study.

I am doing a walk test and spirometry next week at the pulmonary lab and am excited to see if my lung function has improved.

I stated…[Read more]

I just got the OK from my pulmonologist to take 600 mg of EGCG a day. He says it sounds interesting. I had sent him the article from our newsletter.

I might do a clinical trial at Stanford Medical School for EGCG that is the same product once the virus has calmed down.

This sounds exciting!