Randy Mauzy
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I have recently begun to experience chills every evening somewhere between 4-7 pm. Not much seems to help except going and getting in a tub of hot water for about 10 minutes. This resolved the problem for another day. I was on Esbriet for two and a half years and now Ofev for fifteen months. Issue just started about a month or two ago. No problem with being too hot or sweats. Pulmonologist surprised.
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@barb-n-wayne-nelson
Wayne
Get mine on Amazon
Randy
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I began taking “Pure Encapsulations” brand of Teavigo Green Tea Supp (EGCG) , no caffeine, at a rate of 900 mg per day 5 months ago. The best I can determine that is the average safe limit from several respected studies. So far my liver and kidney enzymes show no change so I feel comfortable with that dose, no side effects or weight loss. I take EGCG only on an empty stomach (5 hours without food).
Historically, I took Esbriet for the first year then was switched to Ofev about a year ago. My PFT’s steadily declined although less so on Ofev. I had a PFT about the time I started EGCG and one a week ago (4 month interval). The tests showed NO decline between the two, for the first time ever. Performed slightly better on the six minute walk test (extra 20 meters).
From an O2 standpoint, I can maintain 98 % saturation with 2 lpm versus 3.5 lpm (at rest) before starting the EGCG. Less improvement on O2 with activity.
Will be interested to see how the next PFT turns out, but so far I am encouraged.
Randy