[Harry Harrington]

Just a heads up for those hitting 6lpm. Mu pleumonologist switched me over to liquid oxygen. Be3n a nightmare ever since. Can’t imagine why they do this.

My experiences with this so far; these things leak, I got two supply tanks and two portable devices.

Every time I have filled from big tank first my backup would be empty. Just leaked out somehow. My portable tanks are a joke. I tried one out at home to get a feel for it. It lasted three and a half hours. I went out with one next, brought my inogen5 as backup. This tank lasted Two and a half hours. There’s no gage on these instead just a strap you hold and its spring loaded. This tells you how full you are. You can’t trust it. Two days ago I filled one up and went to store. Takes five minutes to get to store and I was in it and of a sudden started getting dizzy and lightheaded. Left store immediately. I got home and was holding onto things to make it to my living room to get air. I’m lucky I made it.

My experience with this has put me on edge. Called VA and told them and they said call delivery company and tell them to come get them. I don’t understand how they can release these to anyone.

After conferring with VA again they told me they were aware of leaks.

[Harry Harrington]

After reading some posts I am wondering do drs give drugs to calm this down.

I’m a vv with exposure to agent orange. Mine started with prostate cancer that spread to my lungs. A year later,2012, I had pf.

I moved to CO in 2019. New lung Dr. Told me in 2021 they could do no more for me. I don’t even know what they did beside run tests. I’ve never been given any drugs for this and Dr now just does video conference. Beginning to think I was deceived. Don’t think VA really cares. For those of you trying for treatment I wish you good luck. I’m not sure what treatment they offer. Good Luck!