Pulmonary Fibrosis News Forums | Sandra Vanzyl | Activity https://pulmonaryfibrosisnews.com/forums/members/sandravanzyl/activity/ Activity feed for Sandra Vanzyl. Tue, 21 Apr 2026 13:38:44 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4c8a8652bd66560256c6577df32cd850 Sandra Vanzyl and Steve Daggett are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/8876/ Wed, 13 Feb 2019 17:20:43 -0600 0 4aeaeafb8e9bfa625540cd8fef228462 Sandra Vanzyl replied to the discussion Kidney Trouble as a Patient with IPF: Can You Relate? in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/kidney-trouble-patient-ipf/#post-16448 Mon, 04 Feb 2019 00:49:39 -0600 Reply to Kidney Trouble as a Patient with IPF: Can You Relate?

Hi Charlene, new kidney issues….forgive me for being so blunt but I sure wish you could meet with the transplant doctors here at TGH….if this new kidney infection is caused by your medications for IPF I honestly think this team would be much more knowledgeable in this ….not that this has happened to me (yet)..but the transplant patients… Read more

]]> 62eff958a250c7917edf5dcd156b4c02 Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/3072/#acomment-7652 Tue, 01 Jan 2019 17:11:34 -0600 Hi Brian, I have also been on oxygen 24/7 since Jan 3rd 2018, life changing to say the least, worked full time in December at a job I loved ….heading to Toronto on Jan 11, listed now and meetingnthe surgeon on Mon. Jan 14……I’m happy to chat with you anytime …..I’m 65 …(don’t know how that happened) …..YIKES

In reply to - George A Rydberg became a registered member ]]> 757dcf6300df561e4a8c24c6d8623620 Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/7471/#acomment-7588 Sun, 30 Dec 2018 04:08:04 -0600 …Hi Charlene, quiet time here this Christmas , I haven’t left the house since Christmas Eve LOL and slept until after 11 am on Christmas morning…sleep deprived I guess. Haven’t seen 2 of my four kids or their Kiddies….I just can’t handle the excitement of it all and don’t want to be a party pooper so I’ve just stayed home. We did… Read more

In reply to - Delores Overby posted an update Hi Charlene, HAPPY HOLIDAYS to you and your family. My family and I enjoyed a quite holiday. I’ve been reading a lot of information about the WEI Institue. I plan to get in touch […] ]]> c5b3c022b49440245dec920e7c517a81 Sandra Vanzyl replied to the discussion Hobbies of Our Talented Forum Members! in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/hobbies-talented-forum-members/#post-15839 Fri, 28 Dec 2018 02:11:55 -0600 Reply to Hobbies of Our Talented Forum Members!

….that’s so good that you have some great hobbies and watercolours to get back into NanaJane…..I’ve been finishing up a wee quilt just tonite for my granddaughter and also have been knitting up some ‘cowls’ ….it was a quiet Christmas here, we invited no one to visit nor did we visit anyone as we prepare for transplant ….I am now listed… Read more

]]> 47807331bda0baac17296aa5b8e721e9 Sandra Vanzyl replied to the discussion Avoiding the "Fight" Mentality as a Chronically-Ill Patient. in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/avoiding-fight-mentality-chronically-ill-patient/#post-15837 Fri, 28 Dec 2018 00:39:48 -0600 Reply to Avoiding the "Fight" Mentality as a Chronically-Ill Patient.

…..so sad to read Serena’s writings.  Fight or flight ….when we are chronically ill as much as we want to try to keep exercising and keep up with daily in home jobs it does become very difficult and so very tiring in and of itself.   As we prepare our move to Toronto for transplant I am somewhat worried about the physio that i will attend 3… Read more

]]> 9977a1a35cf9eb386c021664e984815a Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/7471/#acomment-7499 Thu, 27 Dec 2018 16:18:33 -0600 Hi Charlene, I thought I’d leave you my cell phone number in the event we can meet up for coffee, lunch or even dinner, whatever works for you …343-543-4565 …I have 24/7 unlimited text and talk within Canada ….hope to hear from you soon …Sandy 😊

In reply to - Delores Overby posted an update Hi Charlene, HAPPY HOLIDAYS to you and your family. My family and I enjoyed a quite holiday. I’ve been reading a lot of information about the WEI Institue. I plan to get in touch […] ]]> 078c963263cce05937bf39e8f170d321 Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/7471/#acomment-7498 Thu, 27 Dec 2018 16:16:07 -0600 Hi Delores, when you are on FB we can chat like we did before …..maybe text me when you are able to be on and I will go on and then we can chat again…..it was nice when we did….xoxxxoxo. 343-543-4565

In reply to - Delores Overby posted an update Hi Charlene, HAPPY HOLIDAYS to you and your family. My family and I enjoyed a quite holiday. I’ve been reading a lot of information about the WEI Institue. I plan to get in touch […] ]]> f22fa09b4d130f944ef08f6d08b11ae5 Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/7471/#acomment-7473 Wed, 26 Dec 2018 14:37:59 -0600 Hi Delores , Merry Christmas ….we had a quiet day on Christmas, haven’t even opened our gifts yet as of this morning. I am listed now and we are moving to Toronto on January 11th….will meet the surgeon on the 14th and start physio probably on the 15th……I sure hope that I don’t have to wait months for the transplant ….I’m so tired… Read more

In reply to - Delores Overby posted an update Hi Charlene, HAPPY HOLIDAYS to you and your family. My family and I enjoyed a quite holiday. I’ve been reading a lot of information about the WEI Institue. I plan to get in touch […] ]]> 0e884e06330f2b332799e46e951faf70 Sandra Vanzyl and Ginger Adelstone are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/7219/ Wed, 12 Dec 2018 01:06:01 -0600 0 2d9f4a856dc7b701fa0083833b802205 Sandra Vanzyl replied to the discussion How to Tell Others You Have Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/tell-others-pulmonary-fibrosis/#post-15625 Tue, 11 Dec 2018 17:36:31 -0600 Reply to How to Tell Others You Have Pulmonary Fibrosis

Hi Charlene, I do hope you know that your employer cannot let you go because of your illness and they have to keep paying your benefits while you work through this IPF, are you looking into transplant at this point, as you know I am and have all my assessments done all with great results (meaning there is nothing else wrong with my body !) and… Read more

]]> 701c1f39eb184c0fc3f3cf55d7ea1d33 Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/7190/#acomment-7196 Tue, 11 Dec 2018 16:42:05 -0600 I hear you, I haven’t worked for all of 2018 but then as I said earlier I’m on oxygen 24/7 so this would not even be possible …..I have very little stress now what with not working , and have worked hard to not have negativity in my life and it really does help my mental state …..

In reply to - Ginger Adelstone posted an update Seems I’m still getting sick every time I turn around. And stress. That can’t be good for me. I’m on the BOD of a couple non profits, and thinking this life is getting […] ]]> c8d5879a929fea3ee002f6908a9a6fcc Sandra Vanzyl replied to the discussion Hobbies of Our Talented Forum Members! in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/hobbies-talented-forum-members/#post-15618 Tue, 11 Dec 2018 16:34:22 -0600 Reply to Hobbies of Our Talented Forum Members!

Hi Ginger , sounds like you’ve got some great hobbies going on…..we are truly fortunate to have crafts, hobbies, photography, art , quilting, knitting to keep us busy some days ….I try to work on something everyday but the odd day here and there I just do nothing and then I feel guilty at the end of the day….it’s almost 1 yr since I’ve… Read more

]]> 182ab91be8bbdf9eda49cd347ca17564 Sandra Vanzyl replied to the discussion Hobbies of Our Talented Forum Members! in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/hobbies-talented-forum-members/#post-15520 Tue, 04 Dec 2018 16:59:25 -0600 Reply to Hobbies of Our Talented Forum Members!

I’m on a quilting site.   Quilt with Pat Sloan, so much happening and sharing on this FAcebook Page…you would be happy to sign up for it.

]]> af95ea45983b490de23b9e18491b7a30 Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/3831/#acomment-5958 Wed, 10 Oct 2018 20:34:45 -0500 Hi Delores…..sorry that I’ve been missing in action….some days I don’t know where the time goes …..was at physio today and will go on Friday again twice a week actually , today and last week I walked a mile on the treadmill is 28 min so I’m pretty happy about that ! How are you feeling lately…beautiful weather today and yesterday here… Read more

In reply to - Delores Overby posted an update Not having a good week. Feeling very depressed. Not only do I have pulmonary fibrosis, I noticed that a rash broke out on my backside,little painful blisters. Found out I now […] ]]> adaa2515c356ade2d0e3c83cf3c798f9 Sandra Vanzyl joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/5547/ Sat, 15 Sep 2018 19:47:57 -0500 0 90a5b9e41d982bd25e7b66e1625a974c Sandra Vanzyl and Liz Martin Drouillard are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/5450/ Sat, 08 Sep 2018 23:08:05 -0500 0 cca812c8e5e60b676d688b76635211dd Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/5445/#acomment-5448 Sat, 08 Sep 2018 16:28:23 -0500 …I made a typo…I was apprehensive to get a second biopsy, not 2nd opinion !!

In reply to - Jim Dawson posted an update @sandravanzyl Thank you for the information. I told the Dr. I was very apprehensive concerning the lung biopsy. He is my second opinion Dr. as I was told to get off of […] ]]> 953990ac3951b9a307c04cf948b03d4a Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/5445/#acomment-5447 Sat, 08 Sep 2018 16:20:02 -0500 Hi Jim, I was apprehensive when that doctor wanted to get a 2nd opinion , after many visits I finally relented and agreed (my pulmonary function was getting less) and this is when I met Dr DeBoer and she adamantly said NO to another biopsy! YAY! I’ve been dealing with this nasty gagging cough for over 15 years and I just feel so many… Read more

In reply to - Jim Dawson posted an update @sandravanzyl Thank you for the information. I told the Dr. I was very apprehensive concerning the lung biopsy. He is my second opinion Dr. as I was told to get off of […] ]]> f3417d4a44c673b58cbe540f12f65ad5 Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/3418/#acomment-5444 Fri, 07 Sep 2018 21:45:28 -0500 Hi , I had a lung biopsy done in 2015 at the same time that I had hernia surgery ….apparently the lung sample the doctor removed looked fine but they wish they had a larger piece of my lung , this is how the ball got rolling because almost 2 years later my doctor kept pressing for me to do another lung biopsy and I finally relented and said… Read more

In reply to - Jim Dawson became a registered member ]]> 4be2afe723a16900e7678dabd25222a8 Sandra Vanzyl replied to the discussion "Surviving IPF" is More Than Just the Physical Impact of the Disease in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/surviving-ipf-just-physical-impact-disease/#post-14322 Wed, 05 Sep 2018 15:54:09 -0500 Reply to "Surviving IPF" is More Than Just the Physical Impact of the Disease

Hi Chuck, I know that waking up in the night routine, coughing my head off, I’ve been doing that for years ….there is a prescription medication that I use when I’m going out to dinner or the movies …it’s called Tussinex…it’s a cough suppressant and it works 95% of the time .   Coughing is brutal and pains our bodies and our… Read more

]]> 9d72ecedf09c6f91d6e25a6a58b83a6f Sandra Vanzyl replied to the discussion "Surviving IPF" is More Than Just the Physical Impact of the Disease in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/surviving-ipf-just-physical-impact-disease/#post-14321 Wed, 05 Sep 2018 15:43:47 -0500 Reply to "Surviving IPF" is More Than Just the Physical Impact of the Disease

This is no doubt a horrible disease Charlene,  and I doubt very much that you would use this as an excuse of any kind to avoid doing certain things with friends.  Whomever said that you’d always have the better excuse because you are ‘dying’ is way off the mark.  That was beyond cruel and in my mind I would never trust that person again nor… Read more

]]> 9557f1529e36b9ffe6faae36113ce04f Sandra Vanzyl replied to the discussion Advice For New Caregivers. in the forum Caregivers and Spouses https://pulmonaryfibrosisnews.com/forums/forums/topic/advice-for-new-caregivers/#post-14302 Tue, 04 Sep 2018 19:09:29 -0500 Reply to Advice For New Caregivers.

Hi Charlene, in replying to your ‘caregiver’ question, my Husband John is my caregiver, and he has been a wonderful caregiver since home from the hospital in January.  He does all the cooking (we also do takeout food , chicken, pizza, Greek food platters, ) but by far does everything as well as hold down a full time job in sales !  He was off… Read more

]]> 6067cce24e15edc94f0f8e270d386b22 Sandra Vanzyl replied to the discussion Portable oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/portable-oxygen/#post-14250 Mon, 03 Sep 2018 15:22:40 -0500 Reply to Portable oxygen

Hi Ladies, I’ve been on oxygen since January 2018′,  2l at rest, 6L when I’m up and about the house such as doing things in the kitchen, tidying up etc.   8L to climb the stairs and sometimes I need it on 10 for the stairs tho’.   Sleep with it on 2.5 L ….the portable oxygen and or tanks are used when a have a coughing episode and now I crank… Read more

]]> 166c070bb4b3dd4577bb60a0af1b0da0 Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/4201/#acomment-5295 Fri, 31 Aug 2018 16:57:36 -0500 Hi Delores, boy oh boy I tried to reply to your email …between texts and phone calls to my insurance provider who said I was covered to get a walker and then I received a notice yesterday that my claim fornthe Walker of $$417 was denied….well that’s not right because my hubby called them before we purchased it and they said we were… Read more

In reply to - Delores Overby posted an update Not having a good week. Stomach issues. Took last prednisone on June 30. I thought I would feel better after they took me off of them.. I lost my appetite which is very worrisome. […] ]]> e6452458d639d181bac6720e456edaff Sandra Vanzyl replied to the discussion Some of My 'Quiet Hobbies'... in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/some-of-my-quiet-hobbies/#post-14184 Wed, 29 Aug 2018 17:38:41 -0500 Reply to Some of My 'Quiet Hobbies'...

Thank you Charlene !  Have a wonderful Day !!!

Cheers

Sandy

]]> b9ae82b9b0ad427eaa31828314cacdfa Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/4201/#acomment-5222 Wed, 29 Aug 2018 00:46:21 -0500 I wish you lived here and then we could cry together and then pull up our big girl undies and venture out together ! I live in Ottawa and heading to Toronto General on the 17th for the week long assessment to hopefully get on the list for transplant. Do you cough a lot Delores ? I do , and it’s the worst when I’m somewhere else ,… Read more

In reply to - Delores Overby posted an update Not having a good week. Stomach issues. Took last prednisone on June 30. I thought I would feel better after they took me off of them.. I lost my appetite which is very worrisome. […] ]]> 9efc7156231b1f6cd4e82354cb0abe4d Sandra Vanzyl replied to the discussion Increased Mental Fatigue & "Fogginess" Since IPF Diagnosis. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/increased-mental-fatigue-fogginess-since-ipf-diagnosis/#post-14155 Tue, 28 Aug 2018 18:37:37 -0500 Reply to Increased Mental Fatigue & "Fogginess" Since IPF Diagnosis.

hi Bill, I have def had some brain fog with ILD….it was especially bad when I was on prednisone so I was slowly weaned off of that.  For the cough I use Tussenix which is very very helpful…it’s a prescription so call your doctor to ask him for a prescription for it….itvis an opioid but as my RN said…when you use an opioid for the… Read more

]]> 97080963dbacfcaa0b030d3ce1ff040b Sandra Vanzyl replied to the discussion Some of My 'Quiet Hobbies'... in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/some-of-my-quiet-hobbies/#post-14144 Tue, 28 Aug 2018 02:29:45 -0500 Reply to Some of My 'Quiet Hobbies'...

…..thankful for the many days that I was so lost and had to do something while i tried to mend ….I seem to mend by March and then have recently been feeling listless and no energy to do much…..I will email a small selection of my hobbies !  Cheers for now Charlene !

]]> f9a753fb036edd9f8a5679b14ad5e23d Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/4201/#acomment-5176 Tue, 28 Aug 2018 02:16:35 -0500 …you will get out of that funk….be kind to yourself …I want my life back as well more than I could think possible ….

In reply to - Delores Overby posted an update Not having a good week. Stomach issues. Took last prednisone on June 30. I thought I would feel better after they took me off of them.. I lost my appetite which is very worrisome. […] ]]> 5ef8b67ad933fc5eeb6f55b46ab6dfda Sandra Vanzyl posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/3831/#acomment-5175 Tue, 28 Aug 2018 02:14:34 -0500 Hi Delores, there is a new shingles vaccine now called Shinrix , I had the first of 2 shots of Shinrix in June because my 35 yr old daughter contracted a mild case of shingles that actually has left some scars on the top of her leg . That’s all I need ! I am also on Mycophenolate since the latter part of February which I also was taking 40… Read more

In reply to - Delores Overby posted an update Not having a good week. Feeling very depressed. Not only do I have pulmonary fibrosis, I noticed that a rash broke out on my backside,little painful blisters. Found out I now […] ]]> 7b5790f192a5fa958c6f3e7d4448684b Sandra Vanzyl replied to the discussion Some of My 'Quiet Hobbies'... in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/some-of-my-quiet-hobbies/#post-14130 Mon, 27 Aug 2018 16:28:04 -0500 Reply to Some of My 'Quiet Hobbies'...

I am going to try to upload a few pix of my hobbies I’ve been working on since home from hospital  (well, not right away, since I was so unwell till into February ).  Loved painting , knitting and some simple little quilts for the grandkiddies …..hope I can upload the photos …Paintings

]]> f0fe3e0edaca7c5732ef7327e32c51ca Sandra Vanzyl changed their profile picture https://pulmonaryfibrosisnews.com/forums/activity/p/5153/ Mon, 27 Aug 2018 16:14:15 -0500 0 c175ab3b082d26c4ad20f15ad96d2ffa Sandra Vanzyl and Deleted User are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/5152/ Mon, 27 Aug 2018 16:13:44 -0500 0 7936666550c7b95bf58af95c3fea462b Sandra Vanzyl changed their profile picture https://pulmonaryfibrosisnews.com/forums/activity/p/5150/ Mon, 27 Aug 2018 16:00:02 -0500 0 fb9499d92b48d0bcb3f9fabdc1ccf7ec Sandra Vanzyl replied to the discussion Tips for Driving with Supplemental Oxygen in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/driving-supplemental-oxygen/#post-14128 Mon, 27 Aug 2018 15:52:19 -0500 Reply to Tips for Driving with Supplemental Oxygen

Hi Charlene …..I don’t really drive too much since I’ve been off work, I had a company vehicle and as of June they have given it to the person replacing me.   But I did drive with the portable and didn’t have any issues with it….lugging it around is definitely a pain in the butt (LOL) but recently got a walker to put it and my purse into… Read more

]]> 810f5ab690145f92d04680d30de0b03d Sandra Vanzyl and Raymond C. King are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/5143/ Mon, 27 Aug 2018 14:36:14 -0500 0 0b5297c7163aca6c7194b3a98fd03a62 Sandra Vanzyl and Ken Jenkinson are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/5137/ Mon, 27 Aug 2018 09:17:19 -0500 0 60dff2121caa5f2062cb18d084696439 Sandra Vanzyl replied to the discussion Timeline From Employment to Unemployment in the forum Employment & Pulmonary Fibrosis https://pulmonaryfibrosisnews.com/forums/forums/topic/timeline-from-employment-to-unemployment/#post-14118 Sun, 26 Aug 2018 21:12:28 -0500 Reply to Timeline From Employment to Unemployment

greetings Mike Sturgill and Charlene….I must be some kind of wonder patient because I’ve been suffering with ILD over 15 years ago (well that’s when the nasty , gagging cough began ) then misdiagnosed for 7 years with asthma which I do not have and never did.  Things progressively got worse…then I’d have a few months of no… Read more

]]> 7c302a2efa0fcc4573fc2ebcff33633a Sandra Vanzyl replied to the discussion Spouse of patient soon to have lung transplant in the forum Caregivers and Spouses https://pulmonaryfibrosisnews.com/forums/forums/topic/spouse-of-patient-soon-to-have-lung-transplant/#post-14083 Fri, 24 Aug 2018 15:58:14 -0500 Reply to Spouse of patient soon to have lung transplant

I would love any advice for my Husband who will be as much a part of my transplant as I will be.  💕

]]> 2e2b38ebc98917666f8a85ad05906341 Sandra Vanzyl became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/4970/ Wed, 22 Aug 2018 23:09:26 -0500 1