[Sandy Karr]

Thank you for all your responses…

For those wondering if Ofev could be linked to stiff and achy knees and/or leg.  I spoke with a ofev nurse advocate in the early part of of 2021 and was told that stiffness and achy knees IS a side effect of ofev. My leg/knee pain was prior to taking ofev   I had several blood test and repeated testing to rule out RA, lupus, sarcoidosis and etc.  I did see an Ortho  Dr. the same time as I started with the pulmonologist and nothing except a shot in the knee and that was good. I did have a mild case of arthritis of the knee.
Fortunately, I am not required to be on oxygen (yet). Been seeing a neuro hoping to see if there is anything he can do or his thoughts which I did have several tests . He too gave me the shot and that lasted about 3 weeks. As of now, the leg/knee is progressing and the inflammation markers are increasing and back on my cane. I see the pulmonologist this month and will get his take if this could be a crossover. I am very lucky as my IPF is progressing slowly for now (according to my Dr.) what a journey……life is good and I am blessed