Sylvain
Forum Replies Created
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Gavin,
I’m 76 years old and I was diagnosed with IPF since 2018. I’ve been addicted to outdoor activities all myI life too many to list. My condition was fairly stable until last November when I experienced an exacerbation event (two weeks after my last Covid booster!!!!) that landed me in the ER. Within two months I was again in the ER.! Since then I’m on 24/7 supplemental oxygen which makes my life as miserable as one can imagine! I’ve been taking Esbriet for the last four years, and now I’m on a high dose of Prednisone, which is an unproven medication for IPF. But there is nothing else other than a lung transplant!!!! From your description I believe you need supplemental oxygen, but this is between you and your doctor to decide. Good luck, and try to stay positive if and when you can! Looking forward to hearing from you. Sylvain
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I’ve been taking Serrapeptase for more than a year. It’s hard to tell if it helps or not, but mucus is really a daily annoyance.
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Trying to ignore the news is my coping strategy, aside from working out, taking daily walks with my wife, playing piano, drawing, reading etc. It doesn’t make my anxieties disappear since the IPF sword is always above my head, but it helps sometimes forget about it.I’m 73 years old and I retired last year, still trying to find my stride. Good luck and stay in touch!
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Never heard of back muscle shrinkage due to IPF. Daily workouts may offset the shrinkage rate. I workout daily and I don’t seem to be bothered by this concern.
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Unfortunately, regular doctors are not familiar with supplements and their interactions with other medications. Additionally, nobody checks the supplements’ sources and everything relared to their manufacturing chain and potential polutants associated with it! Tough choices!…
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One of the concerns I have with the supplements mentioned is the risk of too much of a blood thinner, which can make one prone to hemorrhagic strokes even it protects you from heart attacks or ischemic strokes! It’s tricky to pick up your poison!
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Thanks, Steve. I’ll add astragalus to my daily serrapeptase. I take iSerra delayed realease 250,000 SPU 3 capsules daily. Any suggestions for astragalus dose or manufacturer? As far as working out, I still work out daily by doing 2-3 miles hikes or treadmill if weather is really bad, lift weights and play some indoor tennis. I monitor my O2 saturation and try to keep it above 90. I have an O2 concentrator that I didn’t use so far. I’m 72 and I retired a few months ago. Since all my life I’ve addicted to sports, this disease is really hard for me to get used to but I’m not giving up. I intend to try the WEI institute protocol in the near future and hope that I will get a chance to try some new medications in the near future. Currently, I’m on Esbriet and 200 mg of Doxycycline daily (part of a research study). Good luck to you. Stay in touch. Sylvain
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Serrapeptase seems to help my sinus drain but constant mucus in my throat remains a daily annoyance. What supplements you take to get some relief from it. Sylvain