[Sheila O'Brien]

Hi there

As I don’t have a weight problem, I tended to not be aware of the sugar content I was actually absorbing. Sugar was never mentioned.

These posts have been rather enlightening and will now commit to abandoning it totally from my diet. The odd binge did happen. Worst for me has been the “cough” which also causes breathlessness and anxiety.  I saw a lung oncologist (also have lung cancer) last week who prescribed codeine for the cough.

Starting my 2nd year on Esbriet.

Regards

Sheila

[Sheila O'Brien]

Hi there

I have been taking Esbriet since 1st January 2019. Diagnosed with IPF in August 2018. I am 74yrs old.

I had a gallbladder removal in May this year and that cut down the acid reflux  immensely. However I have had acid reflux since early 2000’s.

No real problems with Esbriet except for a skin outbreak 2 months ago. I don’t know what started that as I’m very careful with Sun exposure.  Was taken off it for 1 wk till the itching stopped and the horrendous rash went down and have been okay since.

As yet I don’t need oxygen and go to the gym a few times a week and spend roughly 1 and 1/2 hrs per visit. Treadmill, bike and chest expansion machines.

I was not informed as to the severity of my IPF or consulted as to which drug was better. I do know that Esbriet costs a small fortune here in NZ but thankfully it is covered by our NHS.

But the cough is still there. Summer has now started so that should improve.

No real problems except I have gone off alcohol and can only manage about 1 glass per week.

I read this column every week with great interest.

Thanks

Sheila.

 

 

[Sheila O'Brien]

Hi everyone

I live in Auckland NZ and have been on Esbriet since the start of the year and was diagnosed with IPF last August . Have had no problems as of yet except fatigue and the inevitable cough.

I would like to know if there is a support group close to me as it would be great to connect with others close by.

[Sheila O'Brien]

( @justme0956 )

 

Hi Paula

Read your comments with interest as I have just experienced a reaction to Esbriet. Have only been on it since Jan this year and up to now no problems. Rash appeared on neck, arms, face and upper chest. Have always applied sunblock as directed so don’t know where this came from. Doctor gave me some cream and tablets to stop the itch. Also stopped the Esbriet two days ago. Everything calming down now.

Like yourself,  I also felt the drug was making a difference.

Good luck.

Sheila.