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    • #22575
      Mark Koziol
      Keymaster

      I am piggybacking off a recent column our own Charlene Marshall wrote. The column is titled “The Direct Influence of Healthy eating on the Body”. Her inspiration for this column came from her attendance at a seminar titled, “Health and Wellness with Pulmonary Fibrosis”. The seminar was part of the PFF Summit in San Antonio this past November. The focus of the seminar was healthy eating and avoiding foods producing carbon dioxide. Charlene writes: “Unsurprisingly, sugar produces the greatest amount of carbon dioxide, so patients with IPF must avoid frequent consumption of sugar.” In her column she also writes; “natural sugars in various fruits do not affect the body the same way that processed sugar does.”

      As patients suffering with PF/IPF we should avoid as much processed sugar as possible. I know I have a sweet tooth. When I can’t avoid sweets like chocolate, candy, and baked or fried sweets it can ruin everything I have accomplished when attempting to lose weight. I am trying to get below 230 pounds. My physician stated to me if I get below this number she will reduce my blood pressure medication dosage. I hover around 250 pounds and have not had the will power to lose the weight. This 10 day plan is concrete and attainable to complete.

      I read a publication that came out yesterday titled, “Break Your Sugar Addiction in 10 Days.” The plan is concise and straight to the point. The processed sugars most of us are consuming increase our chances to acquire inflammation and lower our immune system. My wife completed one of these sugar detoxifications last year. I can attest she felt great and the elimination of sugar facilitated her weight loss. The plan they offer in the publication is easy to follow and doesn’t require a membership to a club or subscription to buy special foods. It is basically using your own will power and making good eating choices.

      Will you try this 10 day sugar detoxification plan?

      Please update the forum on your results.

    • #22602

      Hi @mark-koziol,

      Great post, thank you so  much for sharing this publication with us! Personally, I am pretty good with not craving processed sugars (fingers crossed it stays this way) but I think I’m going to follow this 10 day challenge anyways and see if it helps me! I’ll definitely report back on my results. Anyone else want to try this with me? I love a good challenge 😉

      Char.

    • #22606
      Mark Koziol
      Keymaster

      Thank you Charlene for your kind comments. I am sort of doing this right now but I really need to step up my game. It’s the only way to accomplish my goals.

    • #22629
      Nan
      Participant

      I am reading this as I swallow my last bite of a cinnamon bun. OK I am in, the rest of the buns have been thrown in the freezer for company.

    • #22630
      Mark Koziol
      Keymaster

      Hello Nan, way to go. I got faith in you. From what I am told you will feel a little better after cleansing your body of sugar. I am glad you are doing this. Best wishes, mark.

    • #22650
      Regina Bolyard
      Participant

      I look at sugar….. I gain weight! Same with grains and rice. Sometimes it’s torture to resist, and sometimes I fail. But I feel so much better when I avoid all sources of sugar and starch. I also try to avoid all processed seed oils as these promote inflammation.

      I lost 60 lbs over the course of a year and it helped my breathing tremendously. That was partly due to loss of fat that was further restricting my breathing, but I have no doubt that reducing inflammation also helped. I have no GERD when avoiding these foods either. Since gaining back a significant amount, I definitely feel the burden. I cough and wheeze a lot more when I repeatedly make poor food choices. Reflux also becomes an issue again. Now that I know why I was ill, I have greater incentive to straighten myself out. Especially with upcoming surgery.

      Best wishes for all of you to succeed in your fitness goals!

    • #22651
      Mark Koziol
      Keymaster

      Hello Regina, thank you for sharing your story with the pf forum. I feel like you do. When I’m at a lower weight my breathing seems better. I can not have sweets in the house if I am trying to avoid them. I look at them and I gotta have it. I have no self control. My method is not to buy any and put in the house. I wish for you to have a safe surgery. Best wishes to you and all the members to attain your goals. Mark

    • #22657
      Terry Moriarty
      Participant

      Everyone should watch the movie “That Sugar Movie” on Amazon. Watching that will reinforce the desire to eliminate processed sugar.

      I’ll share my story. I was diagnosed with Hypersensitivity Pneumonitis in 2007 and went chronic (fibrosis) in 2011 and went on oxygen. Since I lived in California and worked in Washington DC, I got a POC for my frequent cross country flights.  I had been obese most of my adult life, but thanks to prednisone, my weight bloomed to 385.

      I had an exacerbation in 1/2018. My oxygen needs went from 4lpm to 8. I had to get a noisy high flow concentrator. I couldn’t use my POC anymore and had to use tanks with highflow cannulas. If I went out, I had to take extra tanks. Since I couldn’t handle them on my own, I ended up using a wheel chair to carry enough tanks. I started using a wheel chair car service. A real downer on my life. The delivery people from Doordash and Instacart were my best friends. Obviously, flying was out of the question.

      In 10/18, my PC doc suggested a diet program called very low calorie diet. Around 600 calories per day. I had already lost 85 lbs, but had plateaued. I went on the medically monitored program of shakes, puddings and soups. I’ve lost 100 lbs. and have another 50 lbs to goal.

      I had my appointment with my pulmonologist yesterday. Did a 6 minute walk and passed at 2 lpm.<span style=”mso-spacerun: yes;”>  </span>My PFT results are back where they were before the exacerbation (FVC 43%, FEV1 50%, TLC 46%, DLCO 19%). Pretty much where they’ve been since 2011.Doctor says the improvements are due to my weight loss and wanted to know more about the diet clinic saying he had possible referrals. I’m also diabetic and have completely stopped using one type of insulin and almost off the other insulin. All due to weight loss.

      Now the downside of this program. It’s really heavy on the artificial sweetners. Their “behavior” counseling program really does nothing to address sugar addiction. Focuses more on calorie management and exercise. So I am concerned that I’ll have problems when food is reintroduced.

      But I’ve seen how well my condition has improved since losing weight, I’m highly motivated to conquering processed sugar.

    • #22666
      Mark Koziol
      Keymaster

      Hello Terry, thank you for sharing your story. Sometimes telling our story can be emotional. Your story tells us you have a wonderful attitude towards your disease. Take care and keep improving. Best wishes, mark.

    • #22669
      Regina Bolyard
      Participant

      Terry Moriarty,

      Thank you so much for sharing your experience. I advocate abstinence from all sources of sugar. That includes all but the lowest glycemic fruit. It seems crushingly restrictive at times but the benefits, for me, are obvious. Deviating from it is equally telling.

       

    • #22670
      JillT
      Participant

      I have been on a low carb/cyclic ketogenic diet since being diagnosed with Type 2 diabetes in 2012. I put on about 20kg after quitting smoking after my IPF diagnosis in 2009 and that tipped me into Type 2. By going so low carb, it’s almost inevitable that most sugars, high starch veg and processed grains are eliminated from the diet. I quickly lost the weight I’d gained, reduced my A1c to non-diabetic levels without medication and have maintained the weight loss for about 7.5 years now. Over the past few years, I’ve also incorporated a time restricted eating regime where I eat 2 meals a day within an 8 hour window.

      Must admit I’ve been a bit more relaxed with my sugar control as I’ve lost more weight since my exacerbation earlier last year. I think the theory about increased metabolic rate must be correct as I hadn’t changed anything about my diet, yet still lost about 4kg without trying prior to going on oxygen. I think weight has stabilized again since starting on oxygen, but I’m now wondering if I shouldn’t get more strict about diet again. I probably average around 100g a day of carbs (including sugars) now, compared to the 60-70g I’d previously been eating. I’ve been telling myself the ice cream (my kryptonite) indulgences aren’t harming me, but I have to wonder.

      There’s a guy who goes by the moniker “COPD Athlete” and his podcast has a lot of information on why a ketogenic diet is ideal for people with hypoxia. The interviews with ketogenic experts and researchers are well worthwhile listening to. I also recall reading about Bill Vick (“PF Warrior”) in a book about Paleo diet success stories after my IPF diagnosis.

      I’ve often wondered if being on the low carb/keto diet helped stave off my progression to almost twice as long as the average time frame, but of course will never know that for sure.

      I’d highly recommend the diet for both weight loss and – probably even more importantly – easy weight loss maintenance. The main thing is to commit to it as a permanent lifestyle change, rather than viewing it as a diet.

      • This reply was modified 1 month ago by JillT.
    • #22672
      Mark Koziol
      Keymaster

      Hello Jill, thanks for sharing your knowledge regarding diet and ipf. You make some wonderful points that have been supported in various research projects. I like what you write at the end of your comments, “commit to it as a permanent lifestyle change, rather than viewing it as a diet”. Excellent analysis and suggestions. Best wishes, mark.

    • #22676
      David Ota
      Participant

      Hi Mark

      I wanted to add a “different” point of view on the sugar topic.  I was at an Indiana University watch party for an IU football game and struck up a conversation with a young man, probably 30-35 years old.  He proceeded to tell me he was on a low/no carb diet and had started intermittent fasting.  I asked him if he planned to live forever<span style=”color: #52565a;”><b>.</b></span>

      He did not have a real answer to my question, but after losing to IPF and getting up every morning to tilt at windmills with someones else lungs, I refuse to give up sugar, red meat, french fries, pizza, vacations, and the general nonsense of life.

      This is from Jason Isbell – If we were vampires

       If we were vampires and death was a joke

      We’d go out on the sidewalk and smoke

      And laugh at all the lovers and their plans

      I wouldn’t feel the need to hold your hand

      Maybe time running out is a gift

      I’ll work hard ’til the end of my shift

      And give you every second I can find

      And hope it isn’t me who’s left behind

      <span style=”color: #52565a;”>IPF was horrible and living with a Lung Transplant is rough, but I guarantee you, I hold my wife’s hand every chance I get, I enjoy every piece of bacon, egg cooked in grease, and the meals I’ve made out of pop cycles.  I never planned to get out of this life alive, but I do want to have fun while I’m here.  </span>

      <span style=”color: #52565a;”>This is not a philosophy for the faint of heart, it take true dedication to be as selfish as it sounds.  Luckily I had decades of practice before IPF ever showed it ugly face on my door step.</span>

      Just another way to wander through life.

      Dave 🙂

      <span style=”color: #52565a;”>            </span>

       

    • #22677
      Mark Koziol
      Keymaster

      Hello David, I wholly respect your opinion. I think it’s great you have this mindset. It is refreshing. I played college football and never really lost the weight that I didn’t need anymore. I had to lose 80 pounds in order to qualify for a transplant. I’m around 250 and would like to go below 230. I think I would be more comfortable. I played at 270 and even got up to 345. I wasn’t very comfortable at those high weights but I was still very active. As an added bonus my doctor said sge would reduce my bp meds if was to get under 230. Rt now I’m eating 5-7 small meals a day and something’s I eat aren’t the best for you but I don’t try to eat everything in sight. Take care, mark. Keep in touch. Love your insights .

    • #23097
      Nan
      Participant

      How is everyone doing with this? Me, not so good. I did not have any weight to loose but in the past 2 weeks I have been eating a lot of sugary treats and white flour and i have gained 3 pounds, now i need to loose weight as that put me in the over weight category. I really need to get on board. I have done intermittent fasting and low carb and i have done vegan. Both times I lost weight and have kept 40 of that 50 pounds off. I understand some people don’t want to give up things they love, i don’t want to either, but I can’t have it everyday. I just feel so much better when i don’t have sugar in my body. I don’t like the bloated feeling i get when i don’t eat right. I also breath better when i feel “lighter”. It is a new week so i will start over, wish me luck!

    • #23103
      Mark Koziol
      Keymaster

      Hello Nan, thank you for sharing. Kicking the sugar habit is a tough thing to do. Sweets surround us everyday. I resonate with the full bloated stomach. When this happens I have some difficulty of doing anything physical until my food digests. You have a happy Sunday. Mark

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