Terry Moriarty

I’ve done both. From what you’ve described, in-home PT would probably be the better starting point. Getting into the rehab facility was difficult for me too and I used  a walker. I had to stop going because of low blood pressure.  Now, I have to use a power wheelchair when out of the house,  as it carries my oxygen tank. I can lower the oxygen lp…[Read more]

Hi Linda,

It hard having a condition that doesn’t have the ability to chart its progression path.  I don’t think that any two people’s journey is the same. I’m 73 this week.

I’ve been on oxygen for 10 years and high flow oxygen for the last 9 months. I’m on 12 lpm resting and 15 lpm moving around. I do not have IPF, but do have PF from…[Read more]

I gained over 100 lbs when on prednisone. I was already obese. I’ve lost 125 lbs on a medically monitored very low calorie diet (VLCD). My BMI is now under 30. I could probably qualify for a transplant, if I wanted one.  VLCD is a tough commitment, but effective, if you can stick with it.

I’ve had all the heart tests. Last month wore a heart monitor. All is fine except for aFib which I’ve had for years.  I’m setting up my appointments for my 6 month checkups now which include a CT scan and PFT.

I don’t live in the beautiful parts of Northern California.  I’m near Sacramento in the agricultural central valley between the beach a…[Read more]

Rene, so good to hear from another low DLCO person. I have Hypersensitivity Pneumonitis which is triggered by some allergent. If you can get away from the trigger, then it can go away permanently. So long as there is no fibrosis. From 2007 to 2011, that’s what happened to me. Then something triggered it again and I progressed to PF.

I’ve been on…[Read more]

I’ve found this discussion very interesting. I was diagnosed with an ILD (not IPF) in 2007. In 2011, I progressed to PF. My PFT results have always been very low, especially DLCO. My average until 2018 was around 35%. Then it dropped to 19%.  At my last PFT (9/20), I made it 21% (woo! woo!).

DLCO is one test that I haven’t gotten any of my…[Read more]

Now that my city has opened up, I thought I’d check my POC vendor’s COVID-19 guidance. I use an Inogen One G2. Their FAQs page says it does NOT filter out the virus droplets, but didn’t say not to use it. Gives instructions about sanitizing it, but no usage precautions. So I called and the CSR checked their FAQs and agreed that their POCs…[Read more]

I had one funny experience when there around words. Probably have to be from US to really experience. I was at my favorite pub for fish and chips. Something I did atleast weekly. This time, there was a group of 6 guys celebrating at a nearby table. One of them called out to me “Hey, unk., Hey, unk”. I ignored him. “Hey, unk” I heard again.…[Read more]

I lived in Australia for 18 months. I really miss it. I didn’t realize that, like the US, there are different accents across the various regions of Australia. Some, I really couldn’t understand. It was really funny at times as I tried to figure out what someone was telling me because we couldn’t understand each other’s accents. Had the same…[Read more]

Last year, the people went after the California poppies that grow wild on the side of some of the freeways. They actually shut down some of the freeways trying to take pictures. I’ve lived in California all my life and don’t remeber anything like that before. We humans have such a herd mentality.

I have a small clump of daffodils that come up…[Read more]

I was too late. They closed Yosemite completely this morning. Most of our other national parks have closed all the facilities but left the roads and trails open. But completely shutdown Yosemite. Oh well. I can also drive to the beach. Being Northern California, there are a lot of more secluded beaches where there won’t be a lot, if any people.…[Read more]

I live in a fairly small North-eastern California county of 385,000. About half of that population resides in the city where I live. The first person to die in the US of COVID-19 was in a hospital here. So the virus is really, real here. However, the county has only 26 cases (up from 19 last week) and the 1 death.

With these numbers, I can…[Read more]

This just really became real for me. The first California death was at a hospital in my city. I cancelled my mani/pedi tomorrow, but have my annual CT scan scheduled for Monday (at a different hospital). My RN daughter-in-law says to cancel it. Have a message into my pulmonary doctor for advice. It’s so hard to get appointments here. Finally, my…[Read more]

I’ve been monitoring very closely since I live 60 miles from Travis Airforce Base and UC Davis Medical Center, where they transferred the first community-transmitted patient, is only 20 miles away. But no cases reported here.

I’m more concerned about my son who lives near the outbreaks in Washington. I’m retired and can stay in if I need to, but…[Read more]

I take that nasal spray for a runny nose caused by my lung condition. I have Hypersensitivity Pneumonitis, not IPF. But once I progressed to fibrosis, there’s not much difference in dealing with the symptoms or side effects. At this point, drug treatment for HP is different from IPF. I’ve gone through all the symptoms and side effects of ILDs in…[Read more]

Forget PC. I think we should print up Tshirts with these slogans. With an added sentence of Donate to the Pulmonary Fibrosis Foundation.

Is it possible to post the transcripts of the podcasts? I don’t absorb the details from listening to an article being read. I need to read and possibly reread it several times for the information to “sink in”.  Thanks.

Everyone should watch the movie “That Sugar Movie” on Amazon. Watching that will reinforce the desire to eliminate processed sugar.

I’ll share my story. I was diagnosed with Hypersensitivity Pneumonitis in 2007 and went chronic (fibrosis) in 2011 and went on oxygen. Since I lived in California and worked in Washington DC, I got a POC for my…[Read more]

There is a small,soft plastic, I guess, ring that goes on the thumb. I’ve read that the thumb is the best place to measure oxygen levels and may explain why there are occasionally difference from finger oxymeters. It has a flexible cord that connects to the fitbit-like device on your wrist. I wear it on my left hand. Don’t notice at all. The big…[Read more]