Lee Bridges
Forum Replies Created
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Thank you for your reply Yoli.
Did you notice breathing problems prior to X-Ray showing the PF? This was what got me researching all the meds I was on. It just slowly progressed and worsened.
Lo and behold…Amiodarone.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2687560/
Best Wishes…Lee.
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Does anyone use a recliner for sleeping? I am looking at this as I sometimes have trouble sleeping lying down. My wife says I sometimes sound like I am drowning. I sleep with a cannula on 2L o2. Thank you.
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Hello All. I have experience with prednisone just this week. And it’s not good. I was diagnosed with PF in 2020 after taking Amiodarone for 9 months. I went from being able to bike for 2 hours to being out of breath walking to my car in the driveway. I am on 2L o2 while sleeping. Amiodarone will kill you and it didn’t even help my AFIB. A cryo-ablation has fixed that. I am 65 and in reasonably good heath otherwise.
Anyway, on May 10, 2021 my pulmonologist put me on 60mg a day prednisone. This stuff is not good for me. My face has swollen. I have gained 10 pounds that I don’t need. I can’t sleep. I am constantly tired. I feel like my mind in in a fog. I can’t concentrate. and the list goes on. Monday this week, June 14 2021, I called my PCP and told her I needed off this stuff right now. I have an appointment with the pulmonologist June 22, 2021 but I didn’t want to wait to start getting off this. I knew from reading that you can’t just quit this med.
She gave me the following weaning schedule: reduce to 50mg daily/1 week, 40mg daily/1 week, 30mg daily/1 week, 20mg daily/1 week, 10mg daily/1 week, follow up.
I can’t wait to get this med out of me. Would I take it again, no way.
