Biography

Name

Mary Susan Satterwhite

Nickname

mary-susan-satterwhite

Year of Birth

06/16/1951

Gender

Female

Location

Tow , Texas

Relationship

Patient

Short Bio

I was diagnosed with ILD 2 years ago that my Pulmonologist thinks I got from my parrot, My FEV has dropped to 47 but has been fairly stable there since starting OFEV,  the med has made me fairly sick but I still feel blessed to be able to take it.

Type of Diagnosis

IPF

Treatment / Medical Facility

I take cell cept and Ofev

Current medication regimen

0fev 150 mg every 12 house and cell cept 100mg, 2 tabs every 12 hours

Lung transplantation status

considering later, to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

Hydrate, wear o2 if needed, losing weight makes it easier to breath

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Friend

How long have you or the person that you are caring for had PF?

At least 2 yr

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