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Mary Susan Satterwhite replied to the topic Digital Clubbing in Pulmonary Fibrosis Patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 8 months ago
Hello friends, I dont really notice my fingers clubbing but my fingernails are. They are flatter and wider and curve over end of finger tips. Nails on both great toes have developed thicker nails and are growing very strange. I feel like I need to file or dreamed off the extra nail, but will consult podiatrist. All of this started when I…[Read more]
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Mary Susan Satterwhite replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 1 year, 8 months ago
I Take 150 mg every 12 hours and I hate the constant diarrhea and weakness, but i do breath better so I do it…I am meeting with the transplant team this Friday so will see how that goes..
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Mary Susan Satterwhite replied to the topic Sudden deterioration in breathing in the forum Diagnosis Information and General Questions 1 year, 10 months ago
Sorry to hear about your adverse reaction to the Moderna vaccine, I had first and second injections with only very sore arm. I have not noticed a change in my breathing related to the vaccines. I am 69 years old.I am on OFEV and cell cept, I have been on bothe for 6 months and although my PFTs have slightly declined, I breath better and maintain…[Read more]
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Mary Susan Satterwhite became a registered member 2 years ago
Hello Mary, thank you for joining your pulmonary fibrosis forum. Welcome!