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  • Suzy42 started the topic ALT levels in the forum Ofev (Nintedanib) 1 month, 2 weeks ago

    I have just heard  from my hospital that i have to stoo taki g Ofev for 2 weeks as my ALT levels have gone from 24 to 97. After 2 weeks another blood test, then if all good they will start me on lower dose of ofev and see how i go. Is there anyway i can get these levels down. Only been taking them for 4 weeks 😥

  • I have been on Ofev for nearly 4 weeks, no side effects for 1st week, 2nd week a bit of nausea only, then last week both hit, sickness and diarrohea. I had immodium to hand and they worked and had anti sickness drug which also worked. It seems to come after breakfast and have noticed that eggs and milk seem to start it off. Im hoping the side…[Read more]

  • Suzy42 posted a new activity comment 1 month, 3 weeks ago

    Thank you Mark and you take care

  • Suzy42 posted a new activity comment 1 month, 3 weeks ago

    Thank you Mark. My story is quite simple, this time last year I went from breathing normally and walking well. Over night I had a funny tingling sensation when I breathed in and then I found I was getting out of breath going upstairs. Later during August I went to see my GP who sent me for chest xray and they did a basic spirometry. The chest xray…[Read more]

    • Hello Suzy, unfortunately the difficulty you had in getting a proper diagnosis will resonate with many of our members. It’s unfortunate some patients go through so much adversity in getting a diagnosis. As lung disease patients we know if we get this Covid 19 there is a higher percentage we will experience more serious outcomes. Wherever you go, p…[Read more]

  • Suzy42 posted a new activity comment 1 month, 3 weeks ago

    Thank you, trying to find my way round these forums. Are there many members from the UK.

    • Yes, there are members from all over globe including the UK. Some members are more active than others. Feel free to write a topic on the subject. Take care and welcome, mark!

      • Thank you Mark. My story is quite simple, this time last year I went from breathing normally and walking well. Over night I had a funny tingling sensation when I breathed in and then I found I was getting out of breath going upstairs. Later during August I went to see my GP who sent me for chest xray and they did a basic spirometry. The chest xray…[Read more]

        • Hello Suzy, unfortunately the difficulty you had in getting a proper diagnosis will resonate with many of our members. It’s unfortunate some patients go through so much adversity in getting a diagnosis. As lung disease patients we know if we get this Covid 19 there is a higher percentage we will experience more serious outcomes. Wherever you go, p…[Read more]

  • Suzy42 became a registered member 1 month, 3 weeks ago

    • Hello Suzy, welcome and thank you for joining your pulmonary fibrosis forum.

      • Thank you, trying to find my way round these forums. Are there many members from the UK.

        • Yes, there are members from all over globe including the UK. Some members are more active than others. Feel free to write a topic on the subject. Take care and welcome, mark!

          • Thank you Mark. My story is quite simple, this time last year I went from breathing normally and walking well. Over night I had a funny tingling sensation when I breathed in and then I found I was getting out of breath going upstairs. Later during August I went to see my GP who sent me for chest xray and they did a basic spirometry. The chest xray…[Read more]

            • Hello Suzy, unfortunately the difficulty you had in getting a proper diagnosis will resonate with many of our members. It’s unfortunate some patients go through so much adversity in getting a diagnosis. As lung disease patients we know if we get this Covid 19 there is a higher percentage we will experience more serious outcomes. Wherever you go, p…[Read more]

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