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Suzy42

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@suzy42

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  • Profile picture of Suzy42

    Suzy42 replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 7 months ago

    Glad you got  your 2nd vaccine as government is trying to stop the 2nd one. Waiting for mine still

  • Profile picture of Suzy42

    Suzy42 replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 7 months ago

    Thanks for your reply. I am on the extremely vulnerable list with government,  I get letters from Matt Hancock at every change, so that’s good. I spoke with my gp and she tells me a lot of red tape is holding vaccination up in the countryside especially where I live. So I think I will just have to wait. I have a blood cancer as well, so I really…[Read more]

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    Suzy42 replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 7 months ago

    Well done Brian, I wonder when I will get it, 68 yes and on Ofev. I’m down the list because of my age.

  • Profile picture of Suzy42

    Suzy42 replied to the topic Anti-Inflammatory Medications and Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 7 months ago

    I have athritic pain in my hips and knee and I was told the Ofev doesn’t mix with nsaids , so not to take. I have to have codeine which ofcourse doesn’t take down inflamation. When i take a break from Ofev i taked nsaids then, wonderful relief.

    Take care and Happy Christmas

  • Profile picture of Suzy42

    Suzy42 replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 7 months ago

    Here in the UK

    1. over 80’s and those in front line medical staff first. Also those in care homes.

    2. 75 yrs and over

    3. 70 yrs + and those extremely vunerable with health issues (IPF).

    4. 65 yrs +

    And so on.

    It seems quite fair here, just wish they would hurry up.

  • Profile picture of Suzy42

    Suzy42 and Profile picture of Charlene MarshallCharlene Marshall are now friends 1 year, 8 months ago

  • Profile picture of Suzy42

    Suzy42 replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 8 months ago

    Depends where you live and how far down the pecking list, I’m hoping for February latest, will keep my fingers and toes crossed

  • Profile picture of Suzy42

    Suzy42 replied to the topic Anti-Inflammatory Medications and Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 8 months ago

    Hi Charlene, I have been told never to take nsaids because of Ofev, I have arthritis and am only prescribed paracetamol and codeine.

  • Profile picture of Suzy42

    Suzy42 started the topic ALT levels in the forum Ofev (Nintedanib) 2 years ago

    I have just heard  from my hospital that i have to stoo taki g Ofev for 2 weeks as my ALT levels have gone from 24 to 97. After 2 weeks another blood test, then if all good they will start me on lower dose of ofev and see how i go. Is there anyway i can get these levels down. Only been taking them for 4 weeks 😥

  • Profile picture of Suzy42

    Suzy42 replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 2 years ago

    I have been on Ofev for nearly 4 weeks, no side effects for 1st week, 2nd week a bit of nausea only, then last week both hit, sickness and diarrohea. I had immodium to hand and they worked and had anti sickness drug which also worked. It seems to come after breakfast and have noticed that eggs and milk seem to start it off. Im hoping the side…[Read more]

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    Suzy42 posted a new activity comment 2 years ago

    Thank you Mark and you take care

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    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years ago

      You are most welcome Suzy!

  • Profile picture of Suzy42

    Suzy42 posted a new activity comment 2 years ago

    Thank you Mark. My story is quite simple, this time last year I went from breathing normally and walking well. Over night I had a funny tingling sensation when I breathed in and then I found I was getting out of breath going upstairs. Later during August I went to see my GP who sent me for chest xray and they did a basic spirometry. The chest xray…[Read more]

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    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years ago

      Hello Suzy, unfortunately the difficulty you had in getting a proper diagnosis will resonate with many of our members. It’s unfortunate some patients go through so much adversity in getting a diagnosis. As lung disease patients we know if we get this Covid 19 there is a higher percentage we will experience more serious outcomes. Wherever you go, p…[Read more]

      • Profile picture of Suzy42
        Suzy42 replied 2 years ago

        Thank you Mark and you take care

        • Profile picture of Mark Koziol
          Mark Koziol replied 2 years ago

          You are most welcome Suzy!

  • Profile picture of Suzy42

    Suzy42 posted a new activity comment 2 years ago

    Thank you, trying to find my way round these forums. Are there many members from the UK.

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    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years ago

      Yes, there are members from all over globe including the UK. Some members are more active than others. Feel free to write a topic on the subject. Take care and welcome, mark!

      • Profile picture of Suzy42
        Suzy42 replied 2 years ago

        Thank you Mark. My story is quite simple, this time last year I went from breathing normally and walking well. Over night I had a funny tingling sensation when I breathed in and then I found I was getting out of breath going upstairs. Later during August I went to see my GP who sent me for chest xray and they did a basic spirometry. The chest xray…[Read more]

        • Profile picture of Mark Koziol
          Mark Koziol replied 2 years ago

          Hello Suzy, unfortunately the difficulty you had in getting a proper diagnosis will resonate with many of our members. It’s unfortunate some patients go through so much adversity in getting a diagnosis. As lung disease patients we know if we get this Covid 19 there is a higher percentage we will experience more serious outcomes. Wherever you go, p…[Read more]

          • Profile picture of Suzy42
            Suzy42 replied 2 years ago

            Thank you Mark and you take care

            • Profile picture of Mark Koziol
              Mark Koziol replied 2 years ago

              You are most welcome Suzy!

  • Profile picture of Suzy42

    Suzy42 became a registered member 2 years ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years ago

      Hello Suzy, welcome and thank you for joining your pulmonary fibrosis forum.

      • Profile picture of Suzy42
        Suzy42 replied 2 years ago

        Thank you, trying to find my way round these forums. Are there many members from the UK.

        • Profile picture of Mark Koziol
          Mark Koziol replied 2 years ago

          Yes, there are members from all over globe including the UK. Some members are more active than others. Feel free to write a topic on the subject. Take care and welcome, mark!

          • Profile picture of Suzy42
            Suzy42 replied 2 years ago

            Thank you Mark. My story is quite simple, this time last year I went from breathing normally and walking well. Over night I had a funny tingling sensation when I breathed in and then I found I was getting out of breath going upstairs. Later during August I went to see my GP who sent me for chest xray and they did a basic spirometry. The chest xray…[Read more]

            • Profile picture of Mark Koziol
              Mark Koziol replied 2 years ago

              Hello Suzy, unfortunately the difficulty you had in getting a proper diagnosis will resonate with many of our members. It’s unfortunate some patients go through so much adversity in getting a diagnosis. As lung disease patients we know if we get this Covid 19 there is a higher percentage we will experience more serious outcomes. Wherever you go, p…[Read more]

              • Profile picture of Suzy42
                Suzy42 replied 2 years ago

                Thank you Mark and you take care

                • Profile picture of Mark Koziol
                  Mark Koziol replied 2 years ago

                  You are most welcome Suzy!

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