Forum Replies Created

  • Sybiĺ Whimster

    Member
    August 11, 2022 at 4:38 pm in reply to: Sam’s Tips for Traveling with O2

    Ijust bought a folding three wheeled walking aid for just that purpose. It has a bag attached to the front big enough to carry a 5litre tank and also serves as something to hang on to for unsteady walking. It is available in UK from a company called careco.com but lm sure will be available else where. I actually bought mine from Amazon for £36.

  • Sybiĺ Whimster

    Member
    February 16, 2022 at 6:35 am in reply to: Prospective change of meds: OFEV to Perfenidone

    I am taking part in the nebulizer trial. I have been doing it twice a day for 6 months. Easy to do, no side effects at all but l don’t  know if it is doing any good! I suppose l will have to wait till some results are published. But l feel perfectly well except for debilitating breathlessness.  Is there anybody out there who can share their experiences?