Forum Replies Created

  • Terry Bass

    Member
    June 23, 2023 at 1:30 pm in reply to: Updates – check-ins- Inspiration – Personal experiences?

    Good news for me and you. To counter the negative reports and provide some inspiration, I would like to report some improvement in my IPF condition.

    It has been 18 months since diagnosis and began on 2LM 24/7. Started Esbreit 15 months ago and there was some stabilizing of IPF, but side effect of sun exposure and blistering skin was too much for me. Stopped it after 7 months and switched to OVEF and there are no side effects for me!

    PFT results are indicating the lung fibrosis has stopped growing. FVC was 66% 16 months ago and now it is 93%, DLCO was 38% then and now it is 59%.

    I’m 79,  stay positive, stay on the oxygen, take the medicine and complete the respiratory therapy weekly.

  • Terry Bass

    Member
    October 20, 2022 at 3:27 pm in reply to: Esbriet and coughing

    I’m using promethazine (aka PROMETH/COD)to eliminate the cough.  Diagnosed with IPF 10 months ago (1/2022).  Using ESBREIT and holding my own.  I learned to take my pill during each meal.  1/2 the meal, take my pill then eat the rest of the meal.  I also have GERD, but take OMEPRZOLE to eliminate the reflux.

    I had a cough initially, but my cough has been eliminated with this cough medication promethazine.

    TBASS

    ALBUQUERQUE, NM