Thomas Adams
Forum Replies Created
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Just curious as to out-of-pocket cost related to double-lung transplant. Assuming one is on Medicare and, recognizing the multitude of coverage options involved with Medicare Part B, what would one say is an average expected out-of-pocket cost for transplant evaluation and the actual procedure. I recognize the potential wide variances possible with this answer! Thanks all.
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Betty:
Thank-you so much for sharing your husband’s story and I am so very sorry for this loss in your family. I have an annual CT scan scheduled for next week and pulmonary function test scheduled for the following week. Then, meet with my pulmonologist to see how things have progressed over the last year. A little worse I fear.
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A couple of questions for those that have received stem-cell therapy for IPF:
1. Was it covered by your insurance and/or Medicare?
2. What was your cost for the procedure?
3. What facilities are currently offering stem-cell therapy for qualified IPF patients?
Thanks for all the input. I am turning 66 in October and was officially diagnosed with IPF last summer following an open lung biopsy. Scheduled for yearly CT scan in a few weeks to check progress. Initial diagnosis/pathology indicated low fibroblast activity but, I think my condition has worsened some over the last year. I really do appreciate this forum and the exchange of ideas and experiences.
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I got my Moderna booster a week ago today. Slightly sore arm and really tired the following day. Just fine the next day.
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Thank-you for your comments and story, Julie. From your and other’s comments, it looks like involving hospice in the final stages is the way to go. They should be able to help with easing suffering and making one as comfortable as possible in the final stages.
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Karen, thank-you for sharing your and your husband’s experience. I am so very sorry for your loss but, glad hospice was there to help.
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Thanks Jan. I just joined the IPF Practical Support Forum on Facebook. The more information, the better.