Forum Replies Created

  • Tom

    Member
    February 20, 2026 at 2:22 pm in reply to: Things about PF I wish I knew when I was diagnosed

    That it can “lay dormant” for a long time, then exacerbate a little, or a lot, on its own or with the help of an outside event of almost anything, ie; a cold, pneumonia, anesthesia, smoke, etc. That you can be going great at one moment, and wake up the next feeling like you are taking your last breath.

  • Tom

    Member
    December 23, 2025 at 5:04 pm in reply to: Nasal Cannula Management

    I use a small piece of Nextape on either side of my face just in front of my ears.

  • Tom

    Member
    October 14, 2025 at 7:52 pm in reply to: Nerandomilast approved by the FDA

    I’ve talked with my care team and they are checking if my insurance will cover it.

  • Tom

    Member
    March 11, 2025 at 3:48 pm in reply to: What hobbies help you escape PF?

    I, also, enjoy HAM radio!

  • Tom

    Member
    October 24, 2019 at 10:14 am in reply to: Hobbies of Our Talented Forum Members!

    WOW, Tom!

    You are definitely a man of many hobbies, and talents!  My hobby is, also, amateur radio (KE8USN) and I’m learning more and more about it as I go along.

    Blessings to you as you continue through this progressive and terminal disease, and keep the great positive attitude!