Tom
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Tom
MemberFebruary 20, 2026 at 2:22 pm in reply to: Things about PF I wish I knew when I was diagnosedThat it can “lay dormant” for a long time, then exacerbate a little, or a lot, on its own or with the help of an outside event of almost anything, ie; a cold, pneumonia, anesthesia, smoke, etc. That you can be going great at one moment, and wake up the next feeling like you are taking your last breath.
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I use a small piece of Nextape on either side of my face just in front of my ears.
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I’ve talked with my care team and they are checking if my insurance will cover it.
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I, also, enjoy HAM radio!
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WOW, Tom!
You are definitely a man of many hobbies, and talents! My hobby is, also, amateur radio (KE8USN) and I’m learning more and more about it as I go along.
Blessings to you as you continue through this progressive and terminal disease, and keep the great positive attitude!