Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Robert B

Home Members Robert B
show less show more
Profile picture of Robert B

@westds01

@charlene-marshall I really appreciated what you wrote about finding some good things during this hard time of isolation. I identified with many of them. I’m walking my dog everyday which I always refused to do because I was always tired but it didn’t keep me from running around. I’ve had to slow down, which has helped me focus on taking […] View
  • Activity
  • Profile
  • Friends 1
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Robert B

    Robert B replied to the topic Prednisone in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 weeks, 5 days ago

    Until 2 years ago, I coughed all the time and got regular lung infections. The pulmonologist said I shouldn’t have to get sick all the time. I started 10 mg of prednisone daily and 250 mg of Azithromicin 3 days a week. I’m still on 3 liters of oxygen and Tellegra daily, but I don’t cough very much and haven’t had a lung infection in 2 years.…[Read more]

  • Profile picture of Robert B

    Robert B replied to the topic IPF stages in the forum Living with Pulmonary Fibrosis: 50+ 8 months, 1 week ago

    Randy, I’m only on 3 but I coughed all the time and had 7 lung infections in a year. My pulmonologist decided to try me on 10 mg of prednisone daily and 250 mg of Azitromiacin (?) three days a week. It has been almost two years and I’ve not had an infection nor do I cough all the time. I rarely cough. I even got by after having Covid. It cha…[Read more]

  • Profile picture of Robert B

    Robert B replied to the topic Coping in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 1 week ago

    I was diagnosed with IPF in early 2000’s. I’ve been on oxygen for 19 years. Two years ago, my pulmonologist prescribed Trelegy as a once a day inhaler, and azitromiasim (?) three days a week and prednisone (steroid) once a day. Before these I coughed all the time and had several lung infections. I’m on 3 liters and function well most of the time.…[Read more]

  • Profile picture of Robert B

    Robert B replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 1 year ago

    I was looking at double lung transplant but due to Covid they were reluctant to push it through. Although, I was vaccinated, I ended up with Covid. Then shingles, and now gastroparesis. I can’t even process food.
    I’m no longer considering a transplant. I’m doing ok on 3 liters of oxygen and don’t need more problems.

  • Profile picture of Robert B

    Robert B replied to the topic Just started on Prednisone. Would love to hear how predisone had helped you orno in the forum Living with Pulmonary Fibrosis: 50+ 1 year ago

    I’ve been taking 10 mg of prednisone for two years. I coughed every day for many years. I also take aurithromiasyn (?) 250 mg m-w-f. The two together have improved my breathing tremendously. Years ago I was on very large doses and gained 45 pounds in two months. I quit taking it but it might have saved my life. Bobby

  • Profile picture of Robert B

    Robert B replied to the topic How does taking Prednisone help IPF patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 2 months ago

    I took prednisone in 1973 and gained 45 pounds in two months. I quit taking it but it helped my lungs. Years later, it was used as a rescue drug when I got an infection. I’ve been on oxygen for 19 years. I coughed all the time until two years ago when the pulmonologist put me on 10 mg daily send an antibiotic three times a week. I lost my cough a…[Read more]

  • Profile picture of Robert B

    Robert B replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 7 months ago

    Prednisone, my first experience was in 1973 when I was diagnosed with hystiocytosis. I was put on 60mg. After one month and 25 lbs. I wouldn’t Continue to take it. 40 lbs. by the time I was weaned but looking back, it may have saved me from more damage.  In 2003 I started on oxygen and was diagnosed with IPF. I coughed a lot and had lots of lu…[Read more]

  • Profile picture of Robert B

    Robert B replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 10 months ago

    In the 1990’s I wasn’t getting enough oxygen and it caused my blood to thicken. I had to have a phlebotomy every 2 months for over 5 years. My blood was so thick, it was hard to function because I had no energy and my head hurt really bad. In 2003, a new doctor prescribed supplemental oxygen. I started at 2 lt and then went to 3 a few years lat…[Read more]

  • Profile picture of Robert B

    Robert B replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 6 months ago

    Mark, that is exactly the kind of story i wanted to hear while making a decision. My health has gone up and down, mostly down. It would really be great to know what normal feels like. Thanks for your note. Bobby

  • Profile picture of Robert B

    Robert B posted a new activity comment 2 years, 6 months ago

    No, it is arithromiacin 250 mg. M-W-F, and Prednisone 7 days 10 mg. I also take Trelogy inhaler daily in place of Advair and Spiriva. The doctor talked to me about thre fibrosis medicine recently but said there were serious side effects. I’m doing really good on what I’m taking now. It is the first time in 20 years I’m not coughing all the…[Read more]

    View Conversation
  • Profile picture of Robert B

    Robert B replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 6 months ago

    In 1973 i had a lung biopsy and was diagnosed with histiocytosis X. Then, later with IPF. Immediately, i was put on 60 mg. of Prednisone but quit after 2 months and gaining 45 pounds. Obviously, it helped to stop the degression in my lungs. On and off i had infections and bronchitis. Several years later, as i was having regular lung infections…[Read more]

  • Profile picture of Robert B

    Robert B replied to the topic COVID-19 and Lung Disease in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 9 months ago

    I am diagnosed with Interstitial Pulmonary fibrosis.  What is the difference between this and Idiopathic Pulmonary fibrosis?

  • Profile picture of Robert B

    Robert B replied to the topic Use of medications bought from other countries in the forum Ofev (Nintedanib) 2 years, 9 months ago

    For a few years Spiriva and Advair cost me so much I looked for a solution.  I found a Canadian Pharmacy (directdiscount drugs)? and it cost me several hundred dollars less, without insurance, than with Medicare.  They came in name brands or generic.  They were from India.  I never once had a problem with them.  I had to order 4 weeks in adva…[Read more]

  • Profile picture of Robert B

    Robert B posted a new activity comment 2 years, 9 months ago

    Thank you

    View Conversation
  • Profile picture of Robert B

    Robert B posted an update 2 years, 9 months ago

    @charlene-marshall I really appreciated what you wrote about finding some good things during this hard time of isolation. I identified with many of them. I’m walking my dog everyday which I always refused to do because I was always tired but it didn’t keep me from running around. I’ve had to slow down, which has helped me focus on taking better…[Read more]

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 2 years, 9 months ago

      Hi @westds01, Robert, thanks so much for your note and kind words! Although it can be tough to focus on the positive and look for good things amid this pandemic, I believe it is so necessary. Learning to slow down and focus on caring for ourselves a little more intently is so important and like you, a lesson I am learning during this tough time as…[Read more]

  • Profile picture of Robert B

    Robert B and Profile picture of Charlene MarshallCharlene Marshall are now friends 2 years, 9 months ago

    • Profile picture of Robert B
      Robert B replied 2 years, 9 months ago

      Thank you

  • Profile picture of Robert B

    Robert B became a registered member 2 years, 9 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 9 months ago

      Hello Robert, thank you for joining your pulmonary fibrosis forum. Welcome!

Profile Photo Dipanwita Samanta Profile Photo Gary

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

Profile picture of Kevin Schaefer
Profile picture of William R.

Newest Topics

  • Who Has Inspired You? by Charlene Marshall
  • Has anyone seen the film “More Than Ever” about an IPF patient? by Frank Bigley
  • Love Letters by Christie Patient
  • Larry Runyon by Samuel Kirton
  • Home Fill oxygen systems by Natalie Mondor

Recent Replies

  • Why do IPF patients lose weight and how to help
  • Who Has Inspired You?
  • Deep Tissue (or red light) Laser Therapy
  • Deep Tissue (or red light) Laser Therapy
  • Life span

Members

Newest | Active | Popular
  • Profile picture of Kevin Schaefer
    Kevin Schaefer
    Active 2 minutes ago
  • Profile picture of William R.
    William R.
    Active 9 minutes ago
  • Profile picture of George Richard
    George Richard
    Active 21 minutes ago
  • Profile picture of Mindy
    Mindy
    Active 22 minutes ago
  • Profile picture of Stan Metcalf
    Stan Metcalf
    Active 59 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen