

worrying_after_dad
Forum Replies Created
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Dear Patricia ❤️ Honestly I do not know, transplantations were done extremely rarely in my country before 2021 when they start to develop. I am not sure about any supporting groups here. Probably there will be many ups and downs, we will be looking for answers then. We will pray for you ❤️
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I will only add that Ofev treatment was not working to my Dad. Last tests showed the progression of ipf and Doctors wanted to stop the treatment. He was taking the pills for a year. He did not really had side effects- dirrahea that started after some time turned out to be just infection.
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Hi! I wanted only to add that Ofev did not work on my Dad compeletly. The problem I described here was because of infections, which we connected to new Ofev treatment.
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Hi All❤️❤️ Thank you all for answering!
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worrying_after_dad
MemberJune 21, 2024 at 2:53 pm in reply to: What portable oxygen concentrator do you recommend?Thank you All for your answers. I am very thankful, they were very helpful.
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Thank you Julian!
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Thank you for your answer Raymond.
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Thank you for your answer ❤️
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Hi Steeve, thank you for your answer.
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Thank you for answering Keith ❤️
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Hi! Turned out to not to work on him… Latest tests shows no response and IPF was only worse. Couple days after information the treatment will be cancelled we got information that there are new lungs for my Dad ❤️
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Larry, thank you for answering.
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Phil, thank you for sharing this information.
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Thank you a lot for your answer. We collected all surveys now and waiting for a decision if he can be on the list. 🙏
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Hi, I am so sorry for your loss. Your story really moved me, life is unfair…
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Hi Buddy38, Thank you for answering ❤️
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Hi Msherbert, Thank you for your answer. Turned out it was flu. He does not suffer from fevers anymore, of course nothing will not stop the PF, but I am happy he has no fevers anymore. I started to believe they are connected with PF and it will remain like this.
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worrying_after_dad
MemberFebruary 15, 2024 at 10:42 pm in reply to: Do you suffer from fever often?Hi Adele, Yes we measure the temperature with a thermometer- shows around 38 -39Celsius. It is happening in the evenings every couple days. We do not think it is connected with any other illness as it is happening so randomly, then couple of days are ok… He his seeing a doctor today.
Thank you for your message.
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Dear Sona, Thank you for you message ❤️ It is so helpful it is still possible to have a wonderful life. Wish you all the best and greetings from Poland ❤️
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Dear Don, I am so thankful for your message ❤️ All the best for you, greetings from Poland