Forum Replies Created

  • worrying_after_dad

    Member
    June 21, 2024 at 2:53 pm in reply to: What portable oxygen concentrator do you recommend?

    Thank you All for your answers. I am very thankful, they were very helpful.

  • worrying_after_dad

    Member
    June 21, 2024 at 2:54 pm in reply to: Transplantation in Poland

    Thank you a lot for your answer. We collected all surveys now and waiting for a decision if he can be on the list. 🙏

  • worrying_after_dad

    Member
    June 2, 2024 at 7:54 am in reply to: Transplantation in Poland

    Hi, I am so sorry for your loss. Your story really moved me, life is unfair…

  • worrying_after_dad

    Member
    May 5, 2024 at 3:52 am in reply to: Worse after OFEV?

    Hi Buddy38, Thank you for answering ❤️

  • worrying_after_dad

    Member
    March 21, 2024 at 1:52 pm in reply to: Do you suffer from fever often?

    Hi Msherbert, Thank you for your answer. Turned out it was flu. He does not suffer from fevers anymore, of course nothing will not stop the PF, but I am happy he has no fevers anymore. I started to believe they are connected with PF and it will remain like this.

  • worrying_after_dad

    Member
    February 15, 2024 at 10:42 pm in reply to: Do you suffer from fever often?

    Hi Adele, Yes we measure the temperature with a thermometer- shows around 38 -39Celsius. It is happening in the evenings every couple days. We do not think it is connected with any other illness as it is happening so randomly, then couple of days are ok… He his seeing a doctor today.

    Thank you for your message.

  • worrying_after_dad

    Member
    February 14, 2024 at 3:25 am in reply to: Worse after OFEV?

    Dear Sona, Thank you for you message ❤️ It is so helpful it is still possible to have a wonderful life. Wish you all the best and greetings from Poland ❤️

  • worrying_after_dad

    Member
    February 14, 2024 at 3:23 am in reply to: Worse after OFEV?

    Dear Don, I am so thankful for your message ❤️ All the best for you, greetings from Poland