Some truly horrific events have occurred in recent weeks. The flash flooding that began in the early hours of July 4 along the Guadalupe River in Texas has claimed 134 lives as of this writing, with dozens more still missing or unaccounted for. Emergency situations are dangerous, but even more…
With PF, preparing for a flash flood emergency is critical
Endeavor Biomedicines’ oral treatment candidate taladegib (ENV-101) has been granted orphan drug designation in the U.S. and the European Union as a treatment for idiopathic pulmonary fibrosis (IPF) In both regions, orphan drug status is intended to incentivize the development of medications for rare diseases. In the EU,…
Joy is a simple three-letter word, but it can be elusive at times for those of us in the pulmonary fibrosis community. Patients and caregivers alike may often feel like no joy is to be found. When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January…
An experimental oral therapy for idiopathic pulmonary fibrosis (IPF) has been tolerated well in an ongoing Phase 2 clinical trial, according to interim data announced by its developer GRI Bio. After reviewing interim data from 24 patients treated with GRI-0621 for six weeks, an independent data monitoring…
This column is scheduled to publish at 10 a.m. Eastern time on July 10, 2025. Four years earlier at this hour, I was undergoing a bilateral lung transplant at Inova Fairfax Hospital here in Virginia. I’d been moved into surgery at 3 a.m., about seven hours earlier. Today, I…
It’s been hotter than usual here in the mid-Atlantic. Temperatures in the upper 90s, flirting with 100 F, plus high humidity made it feel like 107 to 115 F. If I had to sum it up in a single word, I’d pick “miserable.” After my diagnosis of idiopathic…
The National Institutes of Health has awarded $219,000 to fund a project at the University of Texas at Tyler aimed at developing a treatment for radiation-induced pulmonary fibrosis (PF) which can occur after cancer radiation therapy. The study, led by Sreerama Shetty, PhD, a professor at UT Tyler, will…
Being diagnosed in January 2017 with idiopathic pulmonary fibrosis (IPF) and learning that the disease is chronic, progressive, and incurable was a lot for one day. Of course, I wanted a cure or better therapies to be available immediately. But what I came to learn during my journey is…
Starting this week and over the coming months, the Pulmonary Fibrosis Foundation (PFF) will be hosting the PFF Walk 2025 — an annual fundraiser to support its mission of funding research, increasing advocacy, and giving support to people affected by pulmonary fibrosis (PF). The goal of PFF Walk…
When your lungs betray you, your voice becomes your strongest tool. That’s what it means to live and speak through pulmonary fibrosis (PF). Living with PF or another rare disease involves managing various challenges that can affect time, emotional well-being, and physical health. The countless doctor appointments, procedures,…
