Living with a rare disease is expensive. While I agree with the cliches that “money can’t buy happiness” and “time is more valuable than money,” the limited financial aid available to patients stresses me out. When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016, I wasn’t thinking…
A Newsweek article from a few weeks ago was headlined, “Washington, D.C., Endures Most Blistering Heat Wave in Nearly 100 Years.” As I write this, another article, this one from The Washington Post, just dropped, warning that “D.C. area begins fifth heat wave amid one of its…
Enrollment has been completed for a Phase 2a study that’s testing idiopathic pulmonary fibrosis (IPF) treatment BBT-877, an investigational therapy from Bridge Biotherapeutics. The Phase 2a trial (NCT05483907) is evaluating the safety, tolerability, and efficacy of BBT-877 in 120 adults with IPF, ages 40 and older, with or…
Having the support of a loved one is a crucial aspect of the journey with chronic illness. Not having that support can make one feel alone and vulnerable. Conversely, the presence of a supportive partner, family member, or friend can help a patient build the emotional strength that is needed…
Oxygen is necessary for sustaining human life. Most people find the concentration of oxygen in room air (about 21%) to be adequate. For patients with pulmonary fibrosis, this concentration is often inadequate, making supplemental oxygen a life-sustaining necessity. When I was diagnosed with idiopathic pulmonary fibrosis…
Enrollment is complete for a Phase 3 clinical trial testing Tyvaso (treprostinil) inhalation solution for idiopathic pulmonary fibrosis (IPF), United Therapeutics, the therapy’s developer, said. The TETON 2 study (NCT05255991) will evaluate the treatment’s safety and efficacy in 597 adults with IPF, 40 years and older,…
When I was discharged from the hospital following my bilateral lung transplant, it was the beginning of a new segment of my journey. I went into surgery on July 10, 2021, and was discharged on July 20. This was about three and a half years after my diagnosis…
An interdisciplinary group of researchers at the University of Wisconsin (UW)-Madison have received nearly $11 million to study the biological processes that promote lung scarring in idiopathic pulmonary fibrosis (IPF). Funding comes from a four-year grant (HT94252410543) provided by the U.S. Department of Defense. The research will be…
About 28 or 29 hours after the completion of my bilateral lung transplant, I was extubated. I took my first breath on my own with my new lungs. It was the beginning of my road to recovery. When I was diagnosed with idiopathic pulmonary fibrosis (IPF)…
A Phase 2a clinical trial testing the safety of treatment candidate INS018_055 among idiopathic pulmonary fibrosis (IPF) patients in the U.S. is still seeking participants, while a parallel trial in China has now completed enrollment. That’s according to an update from Insilico Medicine, which developed the oral therapy with…
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