Winter storm warning. Those three simple words never bothered me much until I was diagnosed with idiopathic pulmonary fibrosis (IPF). Afterward, those words defeated me. They were an indication of things I could no longer do. Snow, especially deep snow, was too much for me. That all came back…
Recent snowfall reminds me of how I’ve had to accept limitations
Living with a rare lung disease such as pulmonary fibrosis (PF) is a daily battle that requires strength and perseverance. Many individuals, me included, face this journey with courage, often in the shadows of more commonly known illnesses. Preparing for a lung transplant is undeniably tough as well,…
Nerandomilast, an oral treatment being developed by Boehringer Ingelheim, bested a placebo at preserving lung function in adults with progressive pulmonary fibrosis in a Phase 3 study, according to top-line data announced by the company. With those results, nerandomilast met the primary endpoint, or goal, of the study,…
Have you seen the T-shirt or sign that reads “Keep Calm and Carry On” (KCCO)? You might be surprised to learn the story behind this phrase. Created in 1939, it was part of a three-poster series intended to boost morale during World War II. Ironically, the Keep Calm…
Low total cholesterol levels are linked to a higher risk of death among people with idiopathic pulmonary fibrosis, a new study from China with more than three years of follow-up data found. “We conducted a long-term follow-up study in patients with IPF and observed that lower [total cholesterol] levels…
Exercise is important for people with chronic illness. But as someone living with idiopathic pulmonary fibrosis (IPF), a disease characterized by progressive scarring of the lungs and difficulty breathing, I know working out is easier said than done. I’ve also found some strategies that make it easier for me.
We’re not all the same. When I share details about my journey with idiopathic pulmonary fibrosis (IPF), I don’t want to give the impression that I’m setting a standard. My goal in writing this column is to share my experiences, which may or may not be similar to others.
An imbalance in gene activity within two types of immune cells explains why idiopathic pulmonary fibrosis (IPF) progresses but in people who develop lung fibrosis after a severe COVID-19 infection, their lungs get better, a new study finds. Researchers showed mortality risk in IPF and COVID-19 was tied to…
Grief is a universally understood emotion. How that emotion is individually expressed is unique. When I was diagnosed with idiopathic pulmonary fibrosis (IPF), I was 59 years old. I’d experienced loss by then, both family and friends. I cannot bundle grief. In my own unique style, I grieve…
Mediar Therapeutics is planning to launch a Phase 2 clinical trial to test its experimental therapy MTX-463 in people with idiopathic pulmonary fibrosis (IPF). The company has entered into a global licensing agreement with Eli Lilly to advance the development of MTX-463. Mediar will be responsible for…
