The Pulmonary Fibrosis Foundation (PFF) has launched “PF Basics: Info for Newly Diagnosed Patients,” a new educational program to help patients with pulmonary fibrosis (PF) and interstitial lung disease get answers to the most pressing questions about their disease after a recent diagnosis. “We heard from patients and caregivers…
PFF program to aid people with new pulmonary fibrosis diagnosis
Since my diagnosis of idiopathic pulmonary fibrosis (IPF) in 2016, I’ve learned to manage my emotions about my illness. However, there are a few circumstances that make it nearly impossible for me to control how I feel, often causing me to erupt with rage and anger. One of those…
Do you know what a hack is? It’s a way of doing something more simply, efficiently, or effectively. Throughout my journey living with idiopathic pulmonary fibrosis (IPF), I’ve found a number of hacks that make my life easier. When I was diagnosed with IPF in January 2017, I…
MNKD-201, Mannkind’s inhaled formulation of nintedanib for treating idiopathic pulmonary fibrosis (IPF), was found to be safe and well tolerated in a Phase 1 clinical trial involving healthy volunteers — meeting the study’s primary goal. The trial’s results also showed that participants did not experience the typical adverse…
Watching the U.S. elections last week was an exercise in mental health awareness, as is any activity in which the outcome is greeted with mixed reactions and emotions. The refrain from Carly Simon’s 1971 song “Anticipation” came to mind as I was laying out this column: “Anticipation, anticipation/ Is…
CAL101, an investigational therapy with the potential to treat pulmonary fibrosis, showed a favorable safety and pharmacological profile in a Phase 1 clinical trial, according to results announced by Calluna Pharma, its developer. “These results are an important step forward in the development of our lead asset, CAL101,…
How is it already November? Here in the U.S., today is Election Day, so get out and vote if you haven’t already done so. I wanted to take the opportunity this week to update you on topics I’ve discussed in several recent columns. My bronchoscopy Diagnosed with idiopathic…
If you could go back in time, would you want to do it? I’ve given this choice some thought. I would. How would you use the time? When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, I hadn’t heard of it. I immediately began a…
The Center for Regenerative Medicine (CReM) of Boston University and Boston Medical Center will collaborate with GSK to develop stem cell-based models to better understand pulmonary fibrosis and identify new targets for treatments that may halt or slow its progression. “This exciting collaboration with GSK will help ……
What medications do you take regularly, and what are they for? Do you know the possible side effects? When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, I didn’t take many medications. I took a blood pressure medication, an over-the-counter (OTC) allergy pill, and…
