In the U.K., patients with idiopathic pulmonary fibrosis (IPF) who live in economically deprived neighborhoods have worse survival outcomes than those living in more affluent areas, according to a recent study. The study also found that patients who live farther away from specialty care centers tend to have worse…
Low socioeconomic status tied to worse IPF patient outcomes in UK
There’s an Instagram account called “iwastodayyearsold_” (I was today years old) dedicated to sharing unusual discoveries people cannot believe they missed until now. Some of the information is insightful and makes me think, “How could I not have known that?” What if there were a similar resource for…
Pliant Therapeutics’ bexotegrast reversed the signs of lung scarring, while improving lung function and easing cough severity in people with idiopathic pulmonary fibrosis (IPF), according to top-line data from a small Phase 2a imaging trial. Using positron emission tomography (PET) scans, researchers at Massachusetts General Hospital were able…
Music has always played a significant role in my life. From childhood choir performances to playing the trumpet in school bands, melodies have been a constant source of joy, solace, and self-expression. Despite the challenges posed by my pulmonary fibrosis (PF), music remains a trusty companion, offering a therapeutic…
This has been quite the week. I can sum it up in one word: grief, which must be one of the most unpredictable emotions we experience. When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, I made a conscious decision to “be positive in all…
LTI-03, an inhaled therapy for idiopathic pulmonary fibrosis (IPF) from Aileron Therapeutics, was able to reduce levels of several proteins known to promote tissue scarring in the first group of patients participating in a Phase 1b trial, data from the trial showed. The trial (NCT05954988) is assessing…
The life I once knew and loved drastically changed on April 7, 2016. On that day, I was diagnosed with idiopathic pulmonary fibrosis (IPF), a life-threatening and progressive lung disease for which there is no cure. Earlier this month, I marked my eighth anniversary of having IPF —…
“You’ll Never Walk Alone” was written by Richard Rodgers and Oscar Hammerstein II for the 1945 musical “Carousel.” Many others have performed the song over the years, and it’s even become the anthem for Liverpool Football Club in England. Most recently, I’ve enjoyed the version by…
Endeavor BioMedicines has raised $132.5 million toward the clinical development of its pipeline programs, including ENV-101, an investigational oral treatment for idiopathic pulmonary fibrosis (IPF). Results from a recent Phase 2a trial (NCT04968574) showed ENV-101 was generally well tolerated, reduced tissue scarring, or fibrosis, and improved lung…
When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2017, I soon learned the cause and cure were mysteries yet to be solved. I know firsthand how difficult it can be to solve a mystery. Difficult, but seldom impossible. I worked my first career as a special…
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Recent Posts
- Amid a sea of data, the PF community is critical in the search for a cure December 23, 2025
- FDA approves Jascayd for adults with progressive pulmonary fibrosis December 23, 2025
- Oral therapy GRI-0621 boosts lung function, repairs tissue in IPF: Data December 17, 2025
- The greatest gift I’ve received wasn’t under the Christmas tree December 16, 2025
- Reversing caregiver roles taught me about emotional presence December 16, 2025
