After walking from a lunchroom table back to my desk, I remember thinking to myself, “Gosh, I am feeling tired this week.” I reviewed what I might have done differently last week from other weeks, and thought about what might be causing my fatigue. I grappled with the idea…
Constant Fatigue and Its Emotional Toll
Pulmonary fibrosis (PF) is a chronic and progressive lung disease where the air sac in the lungs (alveoli) becomes scarred and stiff making it difficult to breathe and get enough oxygen into the bloodstream. There are a lot of misconceptions when it comes to PF prognosis and life expectancy, so we’ve put…
Prometic recently announced a financial agreement and partnership with Shenzhen Royal Asset Management (SRAM) to develop, manufacture, and commercialize several of its anti-fibrotic products in China, including PBI-4050 for idiopathic pulmonary fibrosis (IPF). PBI-4050 is an anti-fibrotic oral drug, which has demonstrated positive results in a Phase 2 study (NCT02538536) in patients…
This video from The Mighty shares some of the things a person living with a chronic illness might want to carry around with them on a daily basis. MORE: 7 Airway Clearance Techniques The survival pack contains some of the essentials needed to ensure you’re not caught out when going…
By definition, I always understood naivety to mean inexperience, lack of understanding or wisdom about a particular topic. Such things could include naivety about the topic of a difficult discussion, or an unrealistic expectation of a timeline for something to happen. In relation to illness, this definition…
The Chicago-based Pulmonary Fibrosis Foundation (PFF) will hold its inaugural PFF Walk on Sept. 9 to mark PF Awareness Month. More than 400 individuals and 80 teams from across the United States have registered for the event at Chicago’s Lincoln Park. In addition, “virtual walks” will take place throughout the nation…
In this video from Demystifying Medicine, learn more about the difference between pulmonary fibrosis (PF) and idiopathic pulmonary fibrosis (IPF) and hear the answers to other frequently asked questions from patients living with the disease. MORE: Top five recommended reads for pulmonary fibrosis. The animated film tackles…
I recently learned of a competition for innovators and entrepreneurs in the tech, healthcare, and scientific research communities to help those living with pulmonary fibrosis. It’s called the $1 million IPF Catalyst Challenge and it is awarding a million-dollar prize for quality-of-life solutions to help patients and…
While doctors are sometimes able to identify the causes which led to the development of pulmonary fibrosis (PF), there are many instances where the cause can not be determined, making it a case of idiopathic pulmonary fibrosis (IPF). MORE: Study links biology of aging and IPF, opens new paths for possible therapies…
As a patient living with idiopathic pulmonary fibrosis (IPF), I am extremely grateful to the researchers, doctors, health advocates, and other professionals dedicated to enhancing the quality of life for those of us enduring this horrible disease. I am thankful that research is under way to further…
