I recently had a victory in a fight for oxygen, and wanted to share what I learned through the process. I had to fight for oxygen … pretty basic need, right? Like many of you, I’m on supplemental oxygen 24/7. It’s been two years, and it has been a fight…
Fighting for Oxygen
According to the Mayo Clinic, though no current cure for pulmonary fibrosis exists yet, medications and other treatment options can help improve a patient’s quality of life. As the disease evolves, several complications may arise. Here is a list of six possible pulmonary fibrosis complications: 1. High blood pressure in the lungs: Unlike normal high…
Mesenchymal stem cells show considerable potential as a means of treating idiopathic pulmonary fibrosis (IPF), but numerous issues need to be resolved before a stem cell approach might benefit patients. The study, “Mesenchymal stem cells in the treatment of chronic lung disease,” published in the journal Respirology, also underscored…
In this video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis, learn more about the reality of living with IPF and how every single breath counts for the patients living with this disease. Discover why pulmonary fibrosis is so difficult to diagnose and treat.
Inspired by an article written by a wonderful writer, and talented individual who I’m lucky enough to call a friend, I have decided use this post and take a look back at what my life was like a year ago, before IPF. This feels significant in a few different ways,…
‘Exhale, Mindfully Manage Your IPF’ is a new initiative co-sponsored by the American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR), the Pulmonary Fibrosis Foundation, and the international biotechnology firm Genentech. The program’s aim is to help people living with idiopathic pulmonary fibrosis (IPF), and encourage…
Pulmonary Fibrosis Quote: Life in Your Years Living with pulmonary fibrosis is often challenging. Share this quote for pulmonary fibrosis on Pinterest to keep it all in perspective. Remember to live life to the fullest everyday. Abraham Lincoln said, “It’s not the years in your life that count. It’s the…
If you’re like me, you may have different reactions to the phrase “advocate for yourself.” I get it. Your experience, upbringing and background may embrace this message wholeheartedly, or you may shrink back from it either because you were taught not to advocate for yourself, or you simply…
Having to live with a disease like pulmonary fibrosis may be difficult most of the time. But there are some things you can do that may help you manage your condition and make your days a little bit easier. Here are nine tips to help you manage your pulmonary fibrosis (source:…
The National Heart, Lung, and Blood Institute of the National Institutes of Health (NIH) awarded a seven-year grant worth $5.2 million to a team of researchers looking into the cellular and molecular mechanisms that promote lung regeneration, and aiming to develop therapies for children with hereditary lung diseases and adults with pulmonary fibrosis…
