This video, shared by the Pulmonary Fibrosis Foundation, is of a webinar filmed at the PFF Summit: From Bench to Bedside held in Washington D.C. in November 2015. Find out more from the Bench to Bedside Summit about managing pulmonary fibrosis symptoms. Dr. Charlene D. Fell presents…
PFF Summit: Pharmacologic Therapy
Researchers may have discovered a key mechanism underlying pulmonary fibrosis (PF) — the failure of a particular group of lung stem cells to regenerate, hindering the repair of lung tissue in PF. The study, “Hyaluronan and TLR4 promote surfactant-protein-C-positive alveolar progenitor cell renewal and prevent severe pulmonary fibrosis in mice,” was…
This is a plea for your help and guidance. I would love to understand the experiences of others as I try to navigate your thoughts and emotions when someone asks “What is “wrong with you.” It would be particularly helpful to hear from a young adult (up to…
The holidays are coming! They are a challenge to negotiate as a pulmonary fibrosis patient. Here’s some tips I’d like to share to make the most of the holidays while taking good care of yourself. It is normal to have a mixture of feelings…
In this video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis shared in September 2014, Professor Vincent Cottin from the National Reference Center for Rare Pulmonary Diseases in Lyon, France, and Dr. Luca Richeldi from the University of Southampton in the U.K., talk about the importance of early diagnosis of pulmonary…
https://vimeo.com/133560286 In this PatientsLikeMe video shared in 2015, we meet Brian Kincaid. Brian had been diagnosed with idiopathic pulmonary fibrosis and turned to Patients Like Me for online support and information regarding the disease. He became a member of the organization’s team of advisors, offering support to other…
Treatment with PBI-4050 may be a safe and effective therapy for patients with idiopathic pulmonary fibrosis (IPF), according to preliminary results from a Phase 2 clinical trial developed by ProMetic Life Sciences. The study (NCT02538536) has enrolled 40 IPF patients at six different sites in Canada to…
In this animated film from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis, Dr. Iris explains exactly what happens when a person undergoes a lung biopsy and why they may need one in the first place. A study finds that the diagnosis and treatment of PH differs around the world. Read…
Family members of idiopathic pulmonary fibrosis (IPF) patients across generations — their children and grandchildren — recently came together in London recently to sing an emotional rendition of Rachel Platten’s hit “Fight Song,” part of a global campaign (#fightsongchallenge) to promote disease awareness. The campaign encourages IPF patients and their…
Although pulmonary fibrosis (PF) can strike without any known cause (known as idiopathic pulmonary fibrosis) there are factors that can increase your risk of contracting the chronic lung disease. We’ve compiled a list of six risk factors for pulmonary fibrosis based on information from the Mayo Clinic. Age Typically…
