Pulmonary Fibrosis Researcher at UT Health Wins Heart Association Grant

IPF Patients Voice Frustrations with Disease and Public’s Poor Understanding of It

A European survey of patients with idiopathic pulmonary fibrosis (IPF) found that patients well understand the disease’s significant physical and emotional impact on their quality of life, and are frustrated by a perceived lack of quality IPF information and public understanding. The study also underscored the beneficial role of patients’ caregivers and specialist nurses, where available.

IPF Review Study Focuses on Effectiveness of OFEV

A new article that reviews available treatment options for idiopathic pulmonary fibrosis (IPF) took a critical but positive look at available research information for OFEV (nintedanib). The article focuses on the clinical evidence supporting nintedanib as an IPF treatment and on the drug’s pharmacological characteristics. The article, titled “Idiopathic…

IPF Patients Taking High-dose Steriods for Acute Exacerbations May Have Poor Outcomes

Idiopathic pulmonary fibrosis patients experiencing acute exacerbations (IPF-AE) who have a history of immunosuppression and high-dose steroid use are likely to have measurably worse survival outcomes than IPF-AE patients not under such treatment, a new study reported. The research article, “Survival in Idiopathic pulmonary fibrosis acute exacerbations: the non-steroid approach,” was published…

#TBT – Remembering James Doohan

James Doohan was a Canadian actor best known for his role as Montgomery “Scotty” Scott in the television and film series Star Trek. Doohan died on July 20, 2005, at his home in Redmond, Washington due to complications of pulmonary fibrosis, which was believed to be from…

IPF Patients Able to Undergo Long-term Pirfenidone Treatment

Researchers from a large number of international institutions have published an integrated analysis showing that long-term treatment with pirfenidone (Esbriet, Genentech, Roche) in patients with idiopathic pulmonary fibrosis (IPF) can be considered safe. The study, “Safety of pirfenidone in patients with idiopathic pulmonary fibrosis: integrated analysis of…

Your PF Community

Woman laying down reading

Visit the Pulmonary Fibrosis News forums to connect with others in the PF community.

View Forums