As my PF worsens, the list of things I’m able to do and places I’m able to go grows smaller. I’m sure as a patient and a caregiver, you know exactly what I mean.
Grieving as my PF worsens
I grieve for all I’m not able to do and the events I’m not able to attend. Two months ago I missed our niece’s wedding two states away, and I probably won’t be able to attend my best friend’s son’s wedding in a few weeks. Some friends recently invited my husband and I to come over for dinner, but I didn’t feel like I could handle being away from home that long.
As my PF worsens I get fatigued easily, especially when away from my “perfect” environment at home. This includes my recliner, liquid oxygen, and not having to walk very far to get where I want to go. I’ve also found that it is hard for me to really pay attention in social conversations for over an hour. This is a huge change for me, when as a therapist for 30 years, I could see eight clients in a row with no problem.
Enjoying what’s still possible
Even with all these losses, I embrace and enjoy all the things that I still can do. I don’t take anything for granted. Yesterday, I went to the grocery store and did my shopping. I enjoyed walking slowly, looking at everything, and bought what I needed. I’d been wanting to go for several days, but didn’t feel up to it until yesterday.
A few days ago, I planted a few plants in our front flower bed. It is a raised bed, so I could stand while doing it. I had about ten plants I wanted to plant, but knew that would tire me out. I planted five that day, and five the next day. I really enjoyed filling in the bare spots with some beautiful color, and working with the dirt.
Tomorrow, my hubby and I are going to the movies. We have a theater near us where you can watch a movie and also order lunch or dinner. Being able to have a meal makes it extra fun, but the real benefit for me is that there is a lot of extra room around the seats. This leaves plenty of room for my portable oxygen units. We have to bring in three units so I have enough oxygen to spare. I push one on a cart, and my husband carries two of them. This is a fun thing that I’m able to enjoy – and I’m going to enjoy every minute!
How about you?
What kind of things are you still able to do that you enjoy? Do you have any new hobbies that you like? I’d love to hear the ways you embrace and enjoy what you are still able to do.
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Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.
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