About six weeks ago, I shared that I am under consideration by the University of California, San Francisco (UCSF) for a lung transplant. A few weeks ago, I got the good news that UCSF said YES to allow me to start initial testing to be considered for a lung transplant in the future. It is a long process.
Here’s the plan
First, I’m to get caught up on basic health maintenance services. This includes vaccinations (tetanus and hepatitis A and B) and obtaining a letter from my dentist stating that I have no infections and no treatment is needed.
They also requested a TB test, bone density scan, PAP smear results from within the past year, and colonoscopy results from within the past five years.
I’m headed to UCSF this week for a set of noninvasive testing they want to do themselves. Here’s what will happen between 7:30 a.m. and noon:
- chest X-ray
- abdominal ultrasound
- chest CT
- appointment with a social worker
That’s quite a list!
I know I’ll be exhausted by the time I’m finished … and so grateful to be able to start this process of evaluation. I’m also working on some needed weight loss. I’ve lost 15 of 37 pounds so far!
They’ll let me know the results in a few weeks. If all looks good, I’ll head back to UCSF in a few months to do some more tests that are more invasive. I’m nervous about those, but don’t need to think about them right now. I’ll keep you posted.
I know it is a big decision to consider a lung transplant. It is risky. It is a huge operation with a difficult recovery. There are a lot of side effects, and it can be a very rough road. It can also go better than expected. I’ve decided to do my part and pursue the steps necessary to be considered for a transplant. I am letting God guide my path, and if it happens, it happens. If not, it isn’t meant to be. I will adjust to whatever my future holds. I figure it never hurts to try! This verse is a big encouragement to me.
So many of you have reached out to encourage me, and I am so grateful. Thanks to all of you for your love, prayers, and support! I’m grateful for a chance at life!
I’d love to hear from you
What jumped out at you from this column? Are you under consideration for a lung transplant? If so, where are you in the process?
Please leave a comment below, and share with those who could benefit via email or on social media.
Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.
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