I’ve been writing this column for almost two years, and it has been a delight to share with you, get to know you, and learn from your wisdom. I write from my experience as a PF patient and share my struggles as well as some tips I’ve learned along the way.
I’ve devoted many columns to the topic of dealing with supplemental oxygen. I’ve shared what a struggle it was for me to obtain oxygen, and to figure out the ins and outs of using oxygen. I want to pass on what I’ve learned, so I’ve created a series of videos regarding common supplemental oxygen concerns.
Portable oxygen options to use away from home
When I was first diagnosed, my insurance company would not pay for oxygen. That’s another story. I needed to purchase a portable oxygen concentrator to use when walking, so I did a lot of research on the different types of portable oxygen systems to use away from home. In the following video, I share what I know about oxygen cylinders and show you how my portable oxygen concentrator works. I also have my husband demonstrate how to fill liquid oxygen containers for portable use. I hope my previous column on this topic will be helpful as well.
Supplemental oxygen options for home use
I created the next video to highlight the different options available for supplemental oxygen to use at home. As my pulmonary fibrosis worsened, I also needed to purchase a home oxygen concentrator. I share how I raised the money to pay for it and show two oxygen concentrators I’ve used at home, and when we travel. I switched insurance companies to one that pays for my oxygen. Yay!
As my PF worsened, my oxygen needs increased, and so I switched to using liquid oxygen. I share my experience in this video, and in the following one. Here’s one of my columns that gives more information.
Using supplemental liquid oxygen
This is a video I put together that shows how to use liquid oxygen at home as well as away from home. It combines clips from two other videos. I had to fight to get liquid oxygen, and it has been such a help to me as my disease has worsened. I wrote two previous columns about my five-month fight to get it.
A better way to deliver oxygen at home
Using oxygen at home usually includes a 25-foot or 50-foot cord careening through your home, ready to be snagged on or tripped over. I discovered this system for keeping oxygen tubing off the ground, which makes using supplemental oxygen easier to use at home. This was my Christmas present last year! Here’s a recent column with all the details.
Tips for showering with oxygen
For a long time, I didn’t have to use oxygen when showering. About two years into my diagnosis, it became evident that I needed to. I created this video to demonstrate practical tips for showering with supplemental oxygen. In my accompanying column, I share how hard it was to adjust to using oxygen in the shower, and I provide helpful tips to make to a good experience.
Making oxygen tubing a little easier
Dealing with oxygen tubing can really be a pain, so I created a video about how to make it a little easier. I show you how to make your oxygen tubing lie flat on the floor to reduce tripping, and demonstrate two connectors that help with tubing management. Here’s my recent column that gives some more details.
I’ve also done a few more videos for patients about keeping going during tough times and being a good friend to yourself on this PF journey. I have these videos as well as the ones mentioned above in one place on my website to make it a little easier.
I’d love to hear from you
Do these videos make it easier for you to learn how to manage oxygen? Which video(s) were most helpful to you? Are there any other videos you’d like me to create?
Please leave a comment below or on social media.
(Videos courtesy of Kim Fredrickson)
Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.