6 Videos Packed with Tips for Reducing Supplemental Oxygen Hassle

6 Videos Packed with Tips for Reducing Supplemental Oxygen Hassle

Just breathe, passionate help for the PF journey

I’ve been writing this column for almost two years, and it has been a delight to share with you, get to know you, and learn from your wisdom. I write from my experience as a PF patient and share my struggles as well as some tips I’ve learned along the way.

I’ve devoted many columns to the topic of dealing with supplemental oxygen. I’ve shared what a struggle it was for me to obtain oxygen, and to figure out the ins and outs of using oxygen. I want to pass on what I’ve learned, so I’ve created a series of videos regarding common supplemental oxygen concerns.

Portable oxygen options to use away from home

When I was first diagnosed, my insurance company would not pay for oxygen. That’s another story. I needed to purchase a portable oxygen concentrator to use when walking, so I did a lot of research on the different types of portable oxygen systems to use away from home. In the following video, I share what I know about oxygen cylinders and show you how my portable oxygen concentrator works. I also have my husband demonstrate how to fill liquid oxygen containers for portable use. I hope my previous column on this topic will be helpful as well.

Supplemental oxygen options for home use

I created the next video to highlight the different options available for supplemental oxygen to use at home. As my pulmonary fibrosis worsened, I also needed to purchase a home oxygen concentrator. I share how I raised the money to pay for it and show two oxygen concentrators I’ve used at home, and when we travel. I switched insurance companies to one that pays for my oxygen. Yay!

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As my PF worsened, my oxygen needs increased, and so I switched to using liquid oxygen. I share my experience in this video, and in the following one. Here’s one of my columns that gives more information.

Using supplemental liquid oxygen

This is a video I put together that shows how to use liquid oxygen at home as well as away from home. It combines clips from two other videos. I had to fight to get liquid oxygen, and it has been such a help to me as my disease has worsened. I wrote two previous columns about my five-month fight to get it.

A better way to deliver oxygen at home

Using oxygen at home usually includes a 25-foot or 50-foot cord careening through your home, ready to be snagged on or tripped over. I discovered this system for keeping oxygen tubing off the ground, which makes using supplemental oxygen easier to use at home. This was my Christmas present last year! Here’s a recent column with all the details.

Tips for showering with oxygen

For a long time, I didn’t have to use oxygen when showering. About two years into my diagnosis, it became evident that I needed to. I created this video to demonstrate practical tips for showering with supplemental oxygen. In my accompanying column, I share how hard it was to adjust to using oxygen in the shower, and I provide helpful tips to make to a good experience.

Making oxygen tubing a little easier

Dealing with oxygen tubing can really be a pain, so I created a video about how to make it a little easier. I show you how to make your oxygen tubing lie flat on the floor to reduce tripping, and demonstrate two connectors that help with tubing management. Here’s my recent column that gives some more details.

I’ve also done a few more videos for patients about keeping going during tough times and being a good friend to yourself on this PF journey. I have these videos as well as the ones mentioned above in one place on my website to make it a little easier.

I’d love to hear from you

Do these videos make it easier for you to learn how to manage oxygen? Which video(s) were most helpful to you? Are there any other videos you’d like me to create?

Please leave a comment below or on social media.

(Videos courtesy of Kim Fredrickson)

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Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

12 comments

  1. Barbara says:

    I would like to thank Kim Fredrickson for her very inspiring and helpful articles. I also want to thank all who contribute to the newsletter as well as those who leave comments.
    Besides having IPF I also have Scoliosis, degeneration, back pain. Do you have any articles or information on how this affects IPF…I read somewhere that the lungs could be affected. I am experiencing constipation, lack of energy and back pain. I have had a rectal exam and it showed no
    impaction. I am going for a colonoscopy but I was interested in any info you might have.
    Gratefully

    • Dear Barbara,
      Thanks so much for your encouragement! I appreciate it so much 🙂 So sorry you are dealing with so much trouble with your back. Ugh! I don’t know of any articles about this. I had a colonoscopy a awhile ago and my doc recommended taking a fiber supplement everyday and that has been helpful. I get the non-gritty kind from Walmart for a lesser price. I hope this helps.

  2. Leigh Anne Krulicki says:

    Dear Kim
    I have a question to ask. My mom was just diagnosed with ipf and is taking ofev. But she seems to be getting worse with this pill then better. We don’t see Dr for another 3 weeks and was wounding if you have heard of this before or does it take time to feel better

    • Hi Leigh Anne,
      Sosoory your Mom is having such a hard time. Ugh! I don’t have personal experience with Ofev, but I know patients can have a lot of side effects. I would not wait 3 weeks to see the doctor. Call the office and explain what her symptoms are and get their advice. Your Mom is blessed to have you by her side. I know it is all so hard for you too.

  3. Charmaine Nygaard says:

    Kim, The day I read and watched your video, I was just told I need oxygen-and have a flight August 6, 2018. I saw something about Delta giving free oxygen and of some reason, I cannot find the link. You are a life saver-watching your videos gave me more understanding on coping with difficult issue. Delta connection to free oxygen . I saw this while on the site….still looking for it.
    Thanks so much, Charmaine

  4. Carmela says:

    Thanks Kim…Haven’t had a chance to view all yet but very helpful and worthwhile for all of us! In addition to everything else, we have to be engineers and mechanics. Earlier today I had a problem with the cannula, wasn’t getting any oxygen and had no idea what part of this contraption messed up. It took at least 20 minutes going thru trial and error trying to figure out the problem, never thinking it was the cannula. Fortunately we have other PFers to comiserate with. That is a BLESSING!!!!!

    In referene to scoliosis affecting lungs, I don’t know the answer but I have severe inherited rheumatoid arthritis. The rheumatologist explained how RA impacts not only the joints but the lungs and other organs. One speculation from the doctors causing my IPF is the medication I took for the RA for years. Check with your doctor or research a
    reputable internet site.
    Bless all of us with strength and courage on our journey.

    • Hi Carmela,
      Thanks so much for your encouragement. So sorry you’re having to deal with both RA and PF. Not Fair!!! You are right, we all need one another. Blessings to you as well.

  5. Bernice Field says:

    We need remote controls to operate our machines for active or resting! My husband has been in touch with an America manufacturer who told him, they had never had any requests for this. I think this is untrue. We need this urgently. Please, if you feel it would help you, get in touch with manufacturers, tell them we do need this!

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