Happy New Year! I consider it a minor miracle that I made it to 2019. You may feel this way, too. I was diagnosed with pulmonary fibrosis (PF) four and a half years ago and given a few months to a year to live. I’m grateful to be still here in the land of the living.
Being given this dismal timeline made it hard to set new goals because I thought, “Why bother?” I felt this more during the first two years after diagnosis as I worked through my grief. As the years have passed, I’ve come to look forward to setting small goals for the future.
We have now!
I try to remember that despite my diagnosis, I still have now. Please join me in focusing on enjoying the life we have to live today. In reality, whether someone has PF or not, we only have now.
I allow myself to grieve over what I’ve lost but try not to dwell there, because doing so will steal the joy I have in the present moment. I am aware of and talk to God frequently about my fears for the future. I trust that He will guide and direct me with whatever lies ahead, and I will deal with it as it happens. I want to enjoy each moment and spend meaningful times with my loved ones. I want to embrace all that is possible now. You can, too!
Following is a short video I made. Check out the pictures with my sister and husband.
Set small goals
I’ve set some small, achievable goals for myself. As my disease progresses, it feels good to put effort into goals I can control. I’m eating more healthily, exercising a little more, and spending time with my loved ones.
I’m also going to be more careful about how I expend my energy. I recently ordered my groceries online and had them delivered. I’d never done this before and it was a blessing. The store near where I live does the shopping and delivers groceries for no extra charge. This new strategy helps me to conserve my energy for exercise during the day.
Be kind to yourself
Please be kind to yourself as you set goals for 2019. If your diagnosis is recent, you’ve had a recent exacerbation, or you are in the throes of grief, you may not want to, or be able to, set goals. No problem. No matter what, decide to be a good friend to yourself as you live with pulmonary fibrosis.
I’d love to hear from you
Do you have any goals you want to set this year? If so, what are they? What tips can you share to help us achieve our goals?
Please leave a comment below and share with those who could benefit via email or on social media.
Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.