Positive Reflection Helps Cultivate Courage

Positive Reflection Helps Cultivate Courage

I named my column “Courage to Care” because I wanted to convey that it takes a lot of guts to be a caregiver. The moment I decided to take responsibility for protecting my mother, I became a courage-making machine. I have mustered courage all day, every day, to face the scary and unpredictable reality of idiopathic pulmonary fibrosis (IPF) and lung transplant.

I have cultivated it whenever I’ve needed to be my mother’s advocate, or quite literally for a time, her voice. I have summoned it in the face of bad news, in the presence of gut-wrenching fear, in pain and discomfort, and in weakness.

The mental exercise it takes to stay positive, empathetic, and encouraging is tough work. Showing up to the hospital, day after exhausting day, requires bravery. Being a caregiver is not for the weak. It is agonizing to see a loved one suffer and face their mortality. It will scare the crap out of you and break your heart over and over again. And, it is lonely — even if you have help and support.

I’ve had to find the courage to care in so many ways that I could not have anticipated when I got the call that my mom was betting her life on the hope of getting a lung transplant. I’ve certainly had moments of weakness, and a handful of full-blown meltdowns — several of which might have medaled in the ugly-crying Olympics.

But I have also felt clarity and peace. There has been beauty amid this trauma. I’ve shared vulnerable and uplifting moments with my family and friends that I never would have otherwise. People have stepped up for us over and over again. I have felt rewarded and grateful on far more occasions than I have felt weak and hopeless.

One of my techniques for staying grounded and positive is to recognize the good things in each day. Even on the hardest days, there is always some good to be found. Some people call this practicing gratitude. I like to think of it as writing a pro/con list about being a human, but ignoring the cons and highlighting the pros.

Several years ago, I started writing a list of my “daily good things” before bed each night. There have been days when “I’m still breathing” was the only thing I acknowledged. I have really struggled with depressive tendencies, negative self-talk, and anxious thought spirals in the past. I still do sometimes, but I had an epiphany on my way to the hospital one day: Pro-list mode had become my default.

As I was hurtling toward one of the scariest days of my life, I was subconsciously seeking the positives and refusing to let the negatives linger. I knew that I could not be the caregiver my mom needs if I were too terrified or depressed to function. Practicing pro-listing, and finding things to be grateful for allowed courage to occupy all the space that fear once had.

Changing my mindset is an ongoing project, but with time and practice, I’ve heightened my awareness of my internal dialogue. Awareness is the first step to making changes to harmful thought patterns. Do I sound like a therapist? That’s probably because I learned that from my therapist! Anyway, the point is that working on changing how I interpret and react to my experience has given me the mental fortitude to get through this.

If pro-list writing were not part of my mental process, I would have dealt with my mom’s IPF by being paralyzed by panic, unable to be consoled by anyone. I prefer this version, where I have the courage to care.

To close, I’d like to share a pro-list that I wrote on one of the terrifying days when we didn’t know if my mom would become healthy enough to get on the transplant list. I hope it inspires some positive thought spirals in you.

  • I am becoming familiar with San Francisco and feeling creatively inspired by its architecture, colors, and people.
  • Public transit offers time for reflection, reading, good views, and people-watching.
  • I get to have family time.
  • I feel a deep appreciation of my husband, Jonny, for his support and for maintaining our home while I am taking care of things here.
  • I get to see my best friend.
  • I am getting very good at reading lips.
  • I am feeling more in tune with faith.
  • I am surrounded by people who thrive while helping others.
  • I am becoming a better advocate for others, and hopefully, learning to be a better advocate for myself.
  • I am being forced to become comfortable with being patient.
  • I get to see my mom through the eyes of others, and it’s helping me realize how extra special and strong she is.
  • I am lucky to be like her.

***

Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

Originally from Northern California, Christie Patient is a twenty-something jack of all trades who now lives with her husband Jonny and two fur-babies in Washington state. Christie received her Bachelor’s Degree in Writing from The University of Nevada Reno in 2015. Her mother Holly was diagnosed with Idiopathic Pulmonary Fibrosis and received a double lung transplant in early 2019. When she isn’t writing about her experience as one of her mother’s caregivers, Christie can be found exploring the great outdoors, taking photographs, or working on art projects. She hopes that her column can be a space for other caregivers and patients of PF to find strength and understanding.
×
Originally from Northern California, Christie Patient is a twenty-something jack of all trades who now lives with her husband Jonny and two fur-babies in Washington state. Christie received her Bachelor’s Degree in Writing from The University of Nevada Reno in 2015. Her mother Holly was diagnosed with Idiopathic Pulmonary Fibrosis and received a double lung transplant in early 2019. When she isn’t writing about her experience as one of her mother’s caregivers, Christie can be found exploring the great outdoors, taking photographs, or working on art projects. She hopes that her column can be a space for other caregivers and patients of PF to find strength and understanding.

4 comments

  1. Belen Reyes says:

    Thank you so much for sharing this. You have no idea how helpful this was! My father has IPF and it is extremely scary. There are times when I want to run to him to comfort him, but I realize I must be strong as I my role is to comfort him now. Anyways, what you said makes me feel like I’m not alone. Thank you.

    • Christie Patient says:

      Belen, thank you for saying that. I am so glad my words have helped you feel less alone. This is a scary and lonely road to walk sometimes and it’s hard for anyone to really understand unless they’re going through something similar. It’s not easy to reverse roles with your parent when they become ill. So many times I’ve wanted to cry to my mom but I know it would only bring her guilt and pain. I’m lucky to have a lot of support systems in place to help me get through, and I hope you do too. You are always welcome to reach out here if you need someone to empathize. This column is a space to process through this, just as much for you as it is for me. You CAN do this. You are not alone. Sending my love to you and your dad.

  2. Brenda White says:

    My husband has i p f and I just don’t know what to expect. Dr. Don’t tell you much. He had for four years and is not on o2

    • Christie Patient says:

      Hi Brenda,
      I’m sorry you are feeling under-informed about your husband’s illness. My advice would be to ask a lot of questions of his doctor, and don’t be afraid to seek another opinion from a specialist of you aren’t satisfied with the amount of attention they are giving to your concerns. Every case and experience with this disease is different, so take what you learn online with a grain of salt, including what you might learn from my column. I can only tell you what my mom’s experience with IPF has been like from my point of view as her caregiver. I hope it helps, and that you get more support from his medical team to help you both through it.

Leave a Comment

Your email address will not be published. Required fields are marked *